Art & Entertainment | Book Reviews | Education | Entertainment Video | Health | Lifestyle | Sport | Sport Video | Search

 


Gobal Ice Bucket Challenge helps change lives


Gobal Ice Bucket Challenge helps change the lives of kiwis living with MND

The global social media phenomenon, the Ice Bucket Challenge, has bought in much needed funds for kiwis living with MND and raised unprecedented awareness of the fatal disease says Beth Watson, President of the Motor Neurone Disease Association of New Zealand.

The challenge, known overseas as the ALS[1] Ice Bucket Challenge, sees participants have a bucket of ice water tipped on their head to promote awareness of motor neurone disease (MND) and encourage donations to MND. Beth was an early participant in New Zealand after being challenged by Carol Birks, the President of the International Alliance of ALS/MND Associations.

The challenge has raised at least £1 million (NZ$1.9 million) in the United Kingdom and US$88 million (NZ$105 million) for ALS in the United States where the challenge originated.

In New Zealand, National Manager of the Motor Neurone Disease Association Grant Diggle says it has generated huge interest from the public since it went viral during July and August this year, including around $15,000 in donations when MND NZ usually receives around $2,000 on average, a month.

One person who will undertake the challenge this Saturday is 40-year-old doctor, Claire Reilly from Geraldine, who is living with MND.

“When I was training to be a doctor at Otago this was the disease we all feared the most. That’s because it’s like slowly watching your body die. You’re still the same person you’ve always been but now you’re locked in a body that won’t listen,” says Claire.

“This year about 100 people will die from MND and another 100 will be diagnosed. It doesn’t discriminate and most of those diagnosed will die within two to five years.

“I’m hoping that by tipping a bucket of water over my head that I can do something about this dreadful illness,” says Claire.

The association thanks Claire and other New Zealanders who have undertaken the challenge or supported those who have.

“We are really humbled by Claire’s efforts. As if having MND isn’t challenging enough,” Grant says.

“We’d like to thank everyone who has rallied around the cause and supported people living with MND in New Zealand – we welcome any donation big or small. The funds will be used to help people with MND in New Zealand get the right help at the right time. Funding our fieldworkers is an ongoing challenge for us.

“While the amount of money and awareness raised here is small by global standards, it is significant for the near 300 people in New Zealand currently living with MND and will certainly help the Association to support them as they battle with this illness,” says Grant.

“And the massive amount of money raised globally is certainly good news for kiwis with MND if it helps to fund an eventual treatment,” he says.

If you would like to take the challenge you can find more information at www.mnda.org.nz. If you’d prefer to stay warm and dry you can still get involved and support MND by making a valuable donation online:
https://www.fundraiseonline.co.nz/fundraise/makedonation_direct.aspx?c=175

Ends
·

© Scoop Media

 
 
 
 
 
Culture Headlines | Health Headlines | Education Headlines

 

Architecture:
Ian Athfield Dies In Wellington

New Zealand Institute of Architects: It is with great sadness that we inform Members that Sir Ian Athfield, one of New Zealand's finest architects, has passed away in Wellington. More>>

ALSO:

Wellington Production: New-Look Tracy Brothers Are F.A.B.

ITV and New Zealand’s Pukeko Pictures today released an exclusive preview of the new-look Tracy brothers from this year’s hotly anticipated new series, Thunderbirds Are Go. More>>

ALSO:

Cardinal Numbers:
Pope Francis Names Archbishop From NZ Among New Cardinals

Announcing a list of bishops to be made Cardinals in February Pope Francis named Archbishop John Dew, Archbishop of Wellington, overnight from Rome. On hearing the news of the announcement, Archbishop John Dew said "This news is recognition of the Catholic Church in Aotearoa New Zealand, and the contribution it makes to the global Catholic family." More>>

ALSO:

Nomenclature: Charlotte And Oliver Top Baby Names For 2014

Charlotte and Oliver were the most popular names for newborn girls and boys in 2014... The top 100 girls’ and boys’ names make up a small proportion of the more than 12,000 unique first names registered for children born this year, says Jeff Montgomery, Registrar-General of Births, Deaths and Marriage. More>>

Werewolf: Katniss Joins The News Team

From the outset, the Hunger Games series has dwelt obsessively on the ways that media images infiltrate our public and personal lives... From that grim starting point, Mockingjay Part One takes the process a few stages further. There is very little of the film that does not involve the characters (a) being on screens (b) making propaganda footage to be screened and (c) reacting to what other characters have been doing on screens. More>>

ALSO:

Scoop Review Of Books: Ko Witi Te Kaituhituhi

Witi Ihimaera, the distinguished Māori author and the first Māori to publish a book of short stories and a novel, has adopted a new genre with his latest book. But despite its subtitle, this book is a great deal more than a memoir of childhood. More>>

Werewolf: Rescuing Paul Robeson

Would it be any harder these days, for the US government to destroy the career of a famous American entertainer and disappear them from history – purely because of their political beliefs? You would hope so. In 1940, Paul Robeson – a gifted black athlete, singer, film star, Shakespearean actor and orator – was one of the most beloved entertainers on the planet. More>>

ALSO:

"Not A Competition... A Quest": Chapman Tripp Theatre Award Winners

Big winners on the night were Equivocation (Promising Newcomer, Best Costume, Best Director and Production of the Year), Kiss the Fish (Best Music Composition, Outstanding New NZ Play and Best Supporting Actress), and Watch (Best Set, Best Sound Design and Outstanding Performance). More>>

ALSO:

Get More From Scoop

 
 

LATEST HEADLINES

 
 
 
 
Culture
Search Scoop  
 
 
Powered by Vodafone
NZ independent news