Art & Entertainment | Book Reviews | Education | Entertainment Video | Health | Lifestyle | Sport | Sport Video | Search

 


Gobal Ice Bucket Challenge helps change lives


Gobal Ice Bucket Challenge helps change the lives of kiwis living with MND

The global social media phenomenon, the Ice Bucket Challenge, has bought in much needed funds for kiwis living with MND and raised unprecedented awareness of the fatal disease says Beth Watson, President of the Motor Neurone Disease Association of New Zealand.

The challenge, known overseas as the ALS[1] Ice Bucket Challenge, sees participants have a bucket of ice water tipped on their head to promote awareness of motor neurone disease (MND) and encourage donations to MND. Beth was an early participant in New Zealand after being challenged by Carol Birks, the President of the International Alliance of ALS/MND Associations.

The challenge has raised at least £1 million (NZ$1.9 million) in the United Kingdom and US$88 million (NZ$105 million) for ALS in the United States where the challenge originated.

In New Zealand, National Manager of the Motor Neurone Disease Association Grant Diggle says it has generated huge interest from the public since it went viral during July and August this year, including around $15,000 in donations when MND NZ usually receives around $2,000 on average, a month.

One person who will undertake the challenge this Saturday is 40-year-old doctor, Claire Reilly from Geraldine, who is living with MND.

“When I was training to be a doctor at Otago this was the disease we all feared the most. That’s because it’s like slowly watching your body die. You’re still the same person you’ve always been but now you’re locked in a body that won’t listen,” says Claire.

“This year about 100 people will die from MND and another 100 will be diagnosed. It doesn’t discriminate and most of those diagnosed will die within two to five years.

“I’m hoping that by tipping a bucket of water over my head that I can do something about this dreadful illness,” says Claire.

The association thanks Claire and other New Zealanders who have undertaken the challenge or supported those who have.

“We are really humbled by Claire’s efforts. As if having MND isn’t challenging enough,” Grant says.

“We’d like to thank everyone who has rallied around the cause and supported people living with MND in New Zealand – we welcome any donation big or small. The funds will be used to help people with MND in New Zealand get the right help at the right time. Funding our fieldworkers is an ongoing challenge for us.

“While the amount of money and awareness raised here is small by global standards, it is significant for the near 300 people in New Zealand currently living with MND and will certainly help the Association to support them as they battle with this illness,” says Grant.

“And the massive amount of money raised globally is certainly good news for kiwis with MND if it helps to fund an eventual treatment,” he says.

If you would like to take the challenge you can find more information at www.mnda.org.nz. If you’d prefer to stay warm and dry you can still get involved and support MND by making a valuable donation online:
https://www.fundraiseonline.co.nz/fundraise/makedonation_direct.aspx?c=175

Ends
·

© Scoop Media

 
 
 
 
 
Culture Headlines | Health Headlines | Education Headlines

 

TV3 Video: NZ Praised For Sportsmanship After Cricket World Cup Final Loss

New Zealand may have been outplayed in the Cricket World Cup final by Australia, but received praise worldwide for their graciousness in defeat. More>>

ALSO:

Earlier:

Werewolf: Finding Love In Hell

Will it really be 25 years in May since David Lynch’s Wild at Heart won big at Cannes, nabbing no less than the Palme d’Or? Amazing but true, and yet the film that was briefly Lynch’s most feted, now seems to be his most forgotten. More>>

ALSO:

Cricket: Dramatic Win Puts Black Caps In Finals

In Parliament: When Parliament resumed at 2pm the House passed a motion on a voice vote admiring the performance of the New Zealand cricket team in last night’s World Cup semi-final and wishing them well for the final on the weekend. More>>

ALSO:

Moon Shot/Kills Switch: The X Factor Judges Removed

MediaWorks has today decided that Natalia Kills and Willie Moon are no longer suitable to judge The X Factor and have removed them from the show. MediaWorks CEO, Mark Weldon, said that last night on The X Factor both Kills and Moon made comments that were completely unacceptable. More>>

ALSO:

Tessa Nichol: Up Up & Away In The Wairarapa

It’s an overcast morning in the Wairarapa but the mood on the ground in Carterton’s Carrington Park is anything but grey. More than 20 hot air balloons are getting ready to take off into the cloudy sky to mark the start of this year’s Wairarapa Balloon Festival. More>>

Golden Shears: Scotsman Wins Golden Shears Open Final

A Scottish shearer who settled in New Zealand to farm in Taranaki has become the first shearer from overseas to win the Golden Shears Open Shearing Championship. More>>

ALSO:

Get More From Scoop

 
 

LATEST HEADLINES

 
 
 
 
Culture
Search Scoop  
 
 
Powered by Vodafone
NZ independent news