News Video | Policy | GPs | Hospitals | Medical | Mental Health | Welfare | Search

 


Conference To Address People With Rare Diseases

MEDIACOM-RELEASE-NZ-ORGANISATION-FOR-RARE DISEASES

Conference To Address News Of People With Rare Diseases

An organisation for people with rare diseases is to be set up following a conference in September.

The conference, which will run on September 1 and 2, is to be held in Wellington and will have a number of expert speakers. Issues to be covered will include current developments in research and understanding of the causes of rare diseases.

"We are wanting to build a strong alliance between families, patients and research and medical interests," explains John Forman the convenor of the conference steering group.

"The rarity of many diseases means early diagnosis is very difficult. This often has long-term implications for patients and their families, and of course for the health system. A national organisation would coordinate advocacy, education and the promotion of research."

"By forming an umbrella group to represents the interests of all rare diseases, we will also be able support the support groups, which often have very few members."

A detailed conference programme will be produced later this month. These are available from The Conference Organising Committee, NZ Organisation for Rare Diseases, c/- Parent to Parent, PO Box 234, Waikato Mail Centre.

Ends

© Scoop Media

 
 
 
 
 
Culture Headlines | Health Headlines | Education Headlines

 

Scoop Review Of Books: Almost Getting Away With Murder

The Black Widow by Lee-Anne Cartier: Lee-Anne Cartier is the sister of the Christchurch man found to have been murdered by his wife, Helen Milner, after an initial assumption by police that his death, in 2009, was suicide. More>>

Howard Davis: Triple Echo - The Malevich/Reinhardt/Hotere Nexus

Howard Davis: The current juxtaposition of works by Ralph Hotere and Ad Reinhardt at Te Papa perfectly exemplifies Jean Michel Massing's preoccupation with the transmigration of imagery in a remarkable triple echo effect... More>>

Scoop Review Of Books: Nō Tāu Manawa

Vaughan Rapatahana responds to Fale Aitu | Spirit House by Tusiata Avi.
More>>

9 Golds - 21 Medals: NZ Team Celebrates As Rio 2016 Paralympic Games Close

The entire New Zealand Paralympic Team, led by kiwi sprinter and double gold medallist Liam Malone as flag bearer, are on the bus to the Maracanã Stadium in Rio de Janeiro for the Closing Ceremony of the Rio 2016 Paralympic Games. There, they will celebrate the fantastic successes of the past 10 days. More>>

ALSO:

New Zealand Improv Festival: The Festival Of Moments To Return To The Capital

The eighth incarnation of the New Zealand Improv Festival comes to BATS Theatre this 4-8 October , with a stellar line-up of spontaneous theatre and instant comedy performed and directed by top improvisors from around New Zealand and the world. More>>

ALSO:

CDF Tim Keating: NZ Somme Centenary

"Our generals also knew what to expect, and they built that knowledge into their planning. Each of the four set-piece attacks was fought with a single brigade, with the expectation that the brigade would be used up. A fresh brigade would then be brought up to conduct the next set-piece..." More>>

ALSO:

Get More From Scoop

 
 

LATEST HEADLINES

 
 
 
 
Health
Search Scoop  
 
 
Powered by Vodafone
NZ independent news