News Video | Policy | GPs | Hospitals | Medical | Mental Health | Welfare | Search


Organisation For Rare Disorders Newsletter

NZORD - the New Zealand Organisation for Rare Disorders Hello everyone, In this issue: 1 - Pre-implantation Genetic Diagnosis. 2 - Pharmac consultations. 3 - Events calendar for 2004.

1 - Pre-implantation Genetic Diagnosis. With the Human Assisted Reproductive Technology Bill due to be passed soon, and with the National Ethics Committee soon beginning public consultation on this procedure, public comment is increasing about the ethics and impact of this dramatic new technology. We have prepared a commentary on the topic from a family and support group perspective. D=100129 Read more....

&SubCatID=100066&ArticleID=100129> ticleI=100129> &SubCatID=100066&ArticleID=100129

2 - Pharmac consultations.

You can keep up to date with changes that Pharmac proposes to make to the availability or subsidy of your medicine, by registering to receive their email alerts of consultations. This is an easy way to be well informed about proposed changes that may affect medicines of interest to your group, and improves your chances of influencing the final decision. Go to and add your name and email address, then check 'consultations', plus any other information you'd like to receive. NZORD is happy to discuss the implications of any proposed changes for your group, and advise on how you might respond.

3 - Events calendar for 2004.

Over the past year we listed more than 50 support group events. Our list for 2004 will be posted during December. To be included, send details of your event to

© Scoop Media

Culture Headlines | Health Headlines | Education Headlines


Scoop Review Of Books: Salt River Songs by Sam Hunt

Colin Hogg, a longtime comrade of Sam, writes in his Introduction that, ‘There is a lot of death in this collection of new poems by my friend Sam Hunt. It’s easier to count the poems here that don’t deal with the great destroyer than it is to point to the ones that do.’ More>>

Electronica: Restoring The World’s First Recorded Computer Music

University of Canterbury Distinguished Professor Jack Copeland and UC alumni and composer Jason Long have restored the earliest known recording of computer-generated music, created more than 65 years ago using programming techniques devised by Alan Turing. More>>


Scoop Review Of Books: Almost Getting Away With Murder

The Black Widow by Lee-Anne Cartier: Lee-Anne Cartier is the sister of the Christchurch man found to have been murdered by his wife, Helen Milner, after an initial assumption by police that his death, in 2009, was suicide. More>>

Howard Davis: Triple Echo - The Malevich/Reinhardt/Hotere Nexus

Howard Davis: The current juxtaposition of works by Ralph Hotere and Ad Reinhardt at Te Papa perfectly exemplifies Jean Michel Massing's preoccupation with the transmigration of imagery in a remarkable triple echo effect... More>>

Scoop Review Of Books: Nō Tāu Manawa

Vaughan Rapatahana responds to Fale Aitu | Spirit House by Tusiata Avi: "fa’afetai Tusiata, fa’afetai, / you’ve swerved & served us a masterclass corpus / through graft / of tears & fears..." More>>

9 Golds - 21 Medals: NZ Team Celebrates As Rio 2016 Paralympic Games Close

The entire New Zealand Paralympic Team, led by kiwi sprinter and double gold medallist Liam Malone as flag bearer, are on the bus to the Maracanã Stadium in Rio de Janeiro for the Closing Ceremony of the Rio 2016 Paralympic Games. There, they will celebrate the fantastic successes of the past 10 days. More>>


New Zealand Improv Festival: The Festival Of Moments To Return To The Capital

The eighth incarnation of the New Zealand Improv Festival comes to BATS Theatre this 4-8 October , with a stellar line-up of spontaneous theatre and instant comedy performed and directed by top improvisors from around New Zealand and the world. More>>


Get More From Scoop



Search Scoop  
Powered by Vodafone
NZ independent news