Waikato women needed for online survey

Endometriosis Community Research - Waikato Participants needed for online survey

For the first time in New Zealand, women with endometriosis are being invited to participate in a comprehensive research project asking about how endometriosis has affected their lives.

Annette Evans, from community organisation Endometriosis Waikato, said “we need to ensure local services meet the needs of women, so it is crucial that we first understand what those needs are”.

Overseas studies have found the average time from first symptoms to diagnosis is 10 years – often because women and teen girls ‘normalise’ pain symptoms until they become overwhelming. Quality of life was shown to be impaired, absenteeism high, and relationships impacted.

“While we would expect similar findings locally, to date there has been little research undertaken” said Annette.

A key part of the research is a comprehensive online survey, open to all Waikato women with endometriosis, or suspected to have the condition.

Endometriosis is very common, affecting an estimated 20,000 Waikato women and teenage girls.

“Endometriosis affects women of all backgrounds, ethnicities and ages – including teens – so we are encouraging wide participation in the survey, to ensure these voices are well represented” said Annette.

To participate, go to www.endometriosiswaikatoorg.nz and click on the ‘Take Our Survey’ button. The survey takes about 20 minutes and will help to shape local services and support.

The independent research is being conducted by SHORE research at Massey University, and funded by a Lotteries Community Sector Research Grant. Research findings will be available on the website from June next year.

ENDS