News Video | Policy | GPs | Hospitals | Medical | Mental Health | Welfare | Search

 


PHARMAC appeal on treatment for ultra-rare blood disease


New Zealanders rallying PHARMAC for life-saving treatment for ultra-rare blood disease


Eight Kiwis battling an ultra-rare blood disease that claims the lives of one-in-three patients within five years of diagnosis, if untreated, will be appealing to PHARMAC this Thursday, January 24, to save their lives.


A life-saving treatment renowned for its powerful reversal of disease progression, is available under funding arrangements in more than 40 countries world-wide.

Yet New Zealand remains an anomaly – the only country in the advanced OECD not funding the treatment for its citizens.

If these Kiwis don’t get access to this treatment, they will die. It’s simply a matter of time.

Their only hope for survival rests in the hands of NZ government medicines-funding agency, PHARMAC.

ENDS

Download full media kit THURS, JAN 24 @ www.pnhsanz.org.nz/media


Click for big version.

© Scoop Media

 
 
 
 
 
Culture Headlines | Health Headlines | Education Headlines

 

Howard Davis: Orson Welles' Masterpiece - 'Chimes At Midnight'

Never widely distributed in the US, but Welles' own personal favorite and hugely influential on directors as diverse as Kenneth Branagh and Mel Gibson, a restored 50th anniversary print has now reached the New Zealand Film Festival. More>>

Off To Leeds: Wellington’s Local Naked Girl Spreads Her Wings

Wellington born, bred and based live artist Virginia Kennard, self confessed “local naked girl”, has earned a place on the MA in Performance programme at Leeds Beckett University and flies away in 2 months time. More>>

Free Diving: William Trubridge Breaks World Record

With just a single breath, New Zealand free diver William Trubridge has successfully broken his own unassisted free dive world record of 101 metres. More>>

ALSO:

RLWC 2017 Draw: New Zealand Set For A Festival Of Rugby League

New Zealand Rugby League fans will have the chance to see the Kiwis in action against the best in the Pacific region for the Rugby League World Cup 2017, as announced today at the Official Tournament Draw. More>>

ALSO:

Non-Pokemon News: Magical Park A Safer Augmented Reality For Younger Audiences

Since May, Wellington City Council has been trialling a new app, Magical Park, in collaboration with the game’s New Zealand developer Geo AR Games, in parks around the city. Magical Park uses GPS technology to get users moving around the park to play within a set boundary. More>>

'Erroneous': Pokemon App Makers On Huge Privacy Flaw

We recently discovered that the Pokémon Go account creation process on iOS erroneously requests full access permission for the user's Google account... More>>

ALSO:

Get More From Scoop

 
 

LATEST HEADLINES

 
 
 
 
Health
Search Scoop  
 
 
Powered by Vodafone
NZ independent news