News Video | Policy | GPs | Hospitals | Medical | Mental Health | Welfare | Search

 


PHARMAC appeal on treatment for ultra-rare blood disease


New Zealanders rallying PHARMAC for life-saving treatment for ultra-rare blood disease


Eight Kiwis battling an ultra-rare blood disease that claims the lives of one-in-three patients within five years of diagnosis, if untreated, will be appealing to PHARMAC this Thursday, January 24, to save their lives.


A life-saving treatment renowned for its powerful reversal of disease progression, is available under funding arrangements in more than 40 countries world-wide.

Yet New Zealand remains an anomaly – the only country in the advanced OECD not funding the treatment for its citizens.

If these Kiwis don’t get access to this treatment, they will die. It’s simply a matter of time.

Their only hope for survival rests in the hands of NZ government medicines-funding agency, PHARMAC.

ENDS

Download full media kit THURS, JAN 24 @ www.pnhsanz.org.nz/media


Click for big version.

© Scoop Media

 
 
 
 
 
Culture Headlines | Health Headlines | Education Headlines

 

Theatre: Ralph McCubbin Howell Wins 2014 Bruce Mason Award

The Bruce Mason Playwriting Award was presented to Ralph McCubbin Howell at the Playmarket Accolades in Wellington on 23 November 2014. More>>

ALSO:

One Good Tern: Fairy Tern Crowned NZ Seabird Of The Year

The fairy tern and the Fiji petrel traded the lead in the poll several times. But a late surge saw it come out on top with 1882 votes. The Fiji petrel won 1801 votes, and 563 people voted for the little blue penguin. More>>

Music Awards: Lorde Reigns Supreme

Following a hugely successful year locally and internationally, Lorde has done it again taking out no less than six Tuis at the 49th annual Vodafone New Zealand Music Awards. More>>

ALSO:

EPMU: Fourth Pike River Anniversary

Representatives of the Engineering, Printing and Manufacturing Union are proud to stand with the Pike River families to mark four years since 29 men lost their lives. More>>

ALSO:

'Kindara': Unusual Ginger Coloured Kiwi Chick Released To Taupo Creche

A cute little kiwi chick with an unusual ginger tinge to its feathers has just been released to Wairakei Golf & Sanctuary Kiwi Creche in Taupo after hatching at Rainbow Springs' Kiwi Encounter. More>>

Werewolf: The Complicatist : Bob Dylan Himself, And By Others

Bob Dylan is about to release a six CD version of the entire Basement Tapes sessions he recorded with the Band 40 years ago. To mark the occasion, I’ve rustled together some favourite cover versions of Dylan songs, and a few lesser-known tracks by the great man. More>>

ALSO:

Werewolf: Gone Girl : The Trouble With Amy

Philip Matthews: Three words to describe the David Fincher film Gone Girl: cynical, topical and ridiculous. Ridiculous isn’t a negative. More>>

ALSO:

11/11: Armistice Day Peace Vigils

On Armistice Day 2014, the second in the series of peace vigils that will take place three times each year during the World War One centenary will be held in Hokianga, Whangarei, Auckland, Tauranga, Otaki, Lower Hutt, Wellington and Takaka. More>>

ALSO:

Get More From Scoop

 
 

LATEST HEADLINES

 
 
 
 
Health
Search Scoop  
 
 
Powered by Vodafone
NZ independent news