News Video | Policy | GPs | Hospitals | Medical | Mental Health | Welfare | Search

 

World Ankylosing Spondylitis Day

Media Release


ANKYLOSING SPONDYLITIS
It Could Surprise You!

Having trouble pronouncing Ankylosing Spondylitis (AS) which is a form of arthritis – then imagine after years of undiagnosed pain, hearing this diagnosis.

May 4th is WORLD AS DAY


Imagine then being a mother in your mid-forties with 3 daughters aged between 8-14 years and told you have AS after 8 years of pain. The sheer lack of support fear, frustration and wondering where this will all lead. This is Lynda’s story.

Lynda lives with constant pain and need to take medication to help her get some sleep. That was fine until her GP told her the prescription was addictive!

AS typically starts in young adults, but is often overlooked as the symptoms mimic back pain or sports injuries. AS usually occurs in the spine and left untreated can cause the spine to fuse.

Sandra Kirby, Chief Executive of Arthritis New Zealand says, “Lynda is fortunate because as yet she appears not to have any joint fusion.

Lynda’s current treatment is medication (methotrexate a drug used in chemotherapy), physiotherapy/hydrotherapy, prescribed orthotics and daily exercise of yoga or aqua jogging. Taking pets for a walk is also therapeutic
.
Interestingly Lynda’s father also had AS but she doesn’t have the HLA B27 gene which is frequently found in those with AS.

Kirby notes that referral to a rheumatologist, a specialist in arthritis, is essential for a diagnosis of AS.

“With effective treatment AS can be well managed. Exercise and pharmaceuticals play an equally important role in managing AS. Modern biological therapies for AS are now used for patients where other drugs no longer work. These new treatments can prevent spinal degeneration, which is irreversible.” Said Sandra.

Lynda will join other 17 Arthritis Advocates in Auckland this weekend where they will share sessions on
• Support for the newly diagnosed
• Learning advocacy skills
• How to be an effective advocate (with MP Peseta Sam Lotu-iiga)
• Communication


ENDS

© Scoop Media

 
 
 
 
 
Culture Headlines | Health Headlines | Education Headlines

 
Snow Business: Coronet Peak Turns 70

In 1947 Coronet Peak in Queenstown opened with just a rope tow pulling keen skiers up a mountain, the first commercial ski field to open in New Zealand. More>>

Howard Davis: 'Dunkirk'

The British have an extraordinary penchant for celebrating catastrophic military defeats. It is not only the Battle of Hastings, the Charge of the Light Brigade, and Gallipoli that have become immortalized in prose, poetry, and movies ...
More>>

Conservation: Gecko Stolen From DOC Visitor Centre

A long-term resident at the Fiordland National Park Visitor Centre has been stolen. The Marlborough green gecko was reported missing on 19 July. More>>

Scoop Review Of Books: Rare Ingredients

When I heard Kiazim was publishing a cookbook, I jumped at the opportunity... I was back in New Zealand, but how hard could it be to create Turkish-Cypriot cuisine on the opposite side of the world? Well, it turns out — pretty damn hard. More>>

Remembrance: British Memorial Design Revealed

After years of work with Weta Workshop, the British High Commission has revealed the final design of the United Kingdom’s presence in Pukeahu National War Memorial Park. More>>

ALSO:

Scoop Review Of Books: The Whole Intimate Mess

Alison McCulloch: Walker’s account of what she went through is harrowing and intimate, and, at risk of sounding trite, very brave. More>>

 
 
 
 
 

LATEST HEADLINES

  • CULTURE
  • HEALTH
  • EDUCATION
 
 
  • Wellington
  • Christchurch
  • Auckland