News Video | Policy | GPs | Hospitals | Medical | Mental Health | Welfare | Search

 


World Ankylosing Spondylitis Day

Media Release


ANKYLOSING SPONDYLITIS
It Could Surprise You!

Having trouble pronouncing Ankylosing Spondylitis (AS) which is a form of arthritis – then imagine after years of undiagnosed pain, hearing this diagnosis.

May 4th is WORLD AS DAY


Imagine then being a mother in your mid-forties with 3 daughters aged between 8-14 years and told you have AS after 8 years of pain. The sheer lack of support fear, frustration and wondering where this will all lead. This is Lynda’s story.

Lynda lives with constant pain and need to take medication to help her get some sleep. That was fine until her GP told her the prescription was addictive!

AS typically starts in young adults, but is often overlooked as the symptoms mimic back pain or sports injuries. AS usually occurs in the spine and left untreated can cause the spine to fuse.

Sandra Kirby, Chief Executive of Arthritis New Zealand says, “Lynda is fortunate because as yet she appears not to have any joint fusion.

Lynda’s current treatment is medication (methotrexate a drug used in chemotherapy), physiotherapy/hydrotherapy, prescribed orthotics and daily exercise of yoga or aqua jogging. Taking pets for a walk is also therapeutic
.
Interestingly Lynda’s father also had AS but she doesn’t have the HLA B27 gene which is frequently found in those with AS.

Kirby notes that referral to a rheumatologist, a specialist in arthritis, is essential for a diagnosis of AS.

“With effective treatment AS can be well managed. Exercise and pharmaceuticals play an equally important role in managing AS. Modern biological therapies for AS are now used for patients where other drugs no longer work. These new treatments can prevent spinal degeneration, which is irreversible.” Said Sandra.

Lynda will join other 17 Arthritis Advocates in Auckland this weekend where they will share sessions on
• Support for the newly diagnosed
• Learning advocacy skills
• How to be an effective advocate (with MP Peseta Sam Lotu-iiga)
• Communication


ENDS

© Scoop Media

 
 
 
 
 
Culture Headlines | Health Headlines | Education Headlines

 

Eddie Izzard: UK Comedy Legend Returns

Hailed as one of the foremost stand up comedians of his generation. Star of stage and screen. Tireless supporter of charity. Runner. Political campaigner. Fashion Icon... February 2015, Eddie Izzard will bring his massive FORCE MAJEURE world tour to New Zealand with tickets going on sale at 10am on Tuesday 28th October. More>>

Festival Starts 28 Oct: Improv Fest Makes Up New Show

For any other festival, finding out less than two weeks from showtime that half the cast of a programmed show can’t make it to New Zealand would be a nightmare. Instead, the New Zealand Improv Festival Director Jennifer O’Sullivan saw an opportunity ... More>>

NZ Music Awards Finalists: Lorde, Sol3 Mio Top 2014 Tuis Charge

Lorde has taken the music world by storm during the past year and she co-leads the 2014 Tui charge with five finalist spots. Joining her is newcomer family opera trio, Sol3 Mio. They are followed closely by Ladi6 and David Dallas, both up for four awards each. More>>

From 'Luther' Creator: Major New Zealand Crime Series For BBC

Libertine Pictures and writer Neil Cross have teamed up with leading international TV producer Carnival Films to develop a major new crime series set in Rotorua. Libertine will develop the contemporary drama series with Carnival, producer of internationally-acclaimed British period drama Downton Abbey, for the BBC. More>>

ALSO:

Family Statement: Death Of Ewen Gilmour

“Ewen was a much loved and cherished member of our family, he was a larger than life character and by his very nature was kind, generous and always giving of his time to those who asked for his help." More>>

ALSO:

Auckland: St. Jerome's Laneway Festival - Line-Up Announced

Traversing seven cities and three countries, the festival has well and truly settled into its home in each state. From the grassy knolls and towering silos at home in Auckland, to the sparkling backdrop of the Maribyrnong... More>>

Scoop Review Of Books: No Longer An Island

Simon Nathan reviews 'Zealandia: Our Continent Revealed': The idea that New Zealand is part of a large submerged continent is not new... There was renewed interest in the extent of offshore New Zealand from the 1970s onwards with the start of offshore drilling for oil and gas, and this was given impetus by a UN agreement which allowed countries to claim an Extended Continental Shelf (ECS). More>>

Art: Simon Denny Recreates Kim Dotcom’s Personal Effects

Who owns what? How has the internet changed our relation to the world? These are two of the many questions Simon Denny raises in the latest exhibition at the Adam Art Gallery, opening on Saturday 4 October. More>>

ALSO:

Get More From Scoop

 
 

LATEST HEADLINES

 
 
 
 
Health
Search Scoop  
 
 
Powered by Vodafone
NZ independent news