News Video | Policy | GPs | Hospitals | Medical | Mental Health | Welfare | Search

 


Helping children in palliative care

Helping children in palliative care

5 March 2014

Imagine the pain of nursing your terminally ill child.

It is without a doubt the worst thing a parent could ever go through. However, it’s a reality for hundreds of New Zealand families every year.

Throughout the weeks and months (and occasionally years) of a child’s terminal illness many families experience a gentle slide into poverty, as one or both parents stop working.

The Harcourts Foundation is proud to be supporting the Guardian Angels Charitable Trust, which aims to minimise financial stressors for families with babies, children and young people who have been referred to the Paediatric Palliative Care Service at Starship Hospital.

As well as helping families pay their day to day bills, Guardian Angels has set up a Special Wishes Project which helps with the special or unusual needs that arise for which there is no alternative funding.

A Harcourts Foundation grant of $2856 is going towards this incredibly worthwhile project.

A recent example of the type of request the project supports is a wish expressed by 16 year-old, who has advanced Duchennes Muscular Dystophy, a debilitating condition that has left him completely dependent upon others for all aspects of his day to day care.

He is essentially bedbound and requires considerable support to get him out of the house. When asked what he would be doing for Christmas, he said he would be spending the day with his caregiver while his family went to church – as they were unable to pay $200 for the cost of a mobility taxi. Guardian Angels Charitable Trust was able to fund the taxi van and allow him to spend the day with his family.

In another case a dying child wanted to be able to either go to the movies or visit the Sky Tower. His father, who stays with his son in Auckland while his wife continues working in Hamilton, said he could wheel his son there from the hospital in a wheelchair, but was there anyway there could be some help with the cost of the ticket. The Guardian Angels Charitable Trust paid for a taxi and tickets to both the movies and Sky Tower.

Trustees Helen Jackson and Leanne Hegan say it is heart breaking the situations they deal with every day, but the Guardian Angels Charitable Trust is deeply committed to removing unnecessary stress from families already going through so much.

Bob Stubbs, who has recently retired as business owner of Harcourts Greenlane, says one of the amazing things about Guardian Angels Charitable Trust is there are no overheads. Guardian Angels is run solely by volunteers and has no administrative costs so 100% of all donations go to helping the families in need.

Mr Stubbs says he and the Harcourts Foundation are humbled to support such a wonderful cause.

“What the families go through is unbearable. We are happy to make a contribution towards a charity doing such amazing work to help in a practical way.”

ENDS

© Scoop Media

 
 
 
 
 
Culture Headlines | Health Headlines | Education Headlines

 

Eddie Izzard: UK Comedy Legend Returns

Hailed as one of the foremost stand up comedians of his generation. Star of stage and screen. Tireless supporter of charity. Runner. Political campaigner. Fashion Icon... February 2015, Eddie Izzard will bring his massive FORCE MAJEURE world tour to New Zealand with tickets going on sale at 10am on Tuesday 28th October. More>>

Festival Starts 28 Oct: Improv Fest Makes Up New Show

For any other festival, finding out less than two weeks from showtime that half the cast of a programmed show can’t make it to New Zealand would be a nightmare. Instead, the New Zealand Improv Festival Director Jennifer O’Sullivan saw an opportunity ... More>>

NZ Music Awards Finalists: Lorde, Sol3 Mio Top 2014 Tuis Charge

Lorde has taken the music world by storm during the past year and she co-leads the 2014 Tui charge with five finalist spots. Joining her is newcomer family opera trio, Sol3 Mio. They are followed closely by Ladi6 and David Dallas, both up for four awards each. More>>

From 'Luther' Creator: Major New Zealand Crime Series For BBC

Libertine Pictures and writer Neil Cross have teamed up with leading international TV producer Carnival Films to develop a major new crime series set in Rotorua. Libertine will develop the contemporary drama series with Carnival, producer of internationally-acclaimed British period drama Downton Abbey, for the BBC. More>>

ALSO:

Family Statement: Death Of Ewen Gilmour

“Ewen was a much loved and cherished member of our family, he was a larger than life character and by his very nature was kind, generous and always giving of his time to those who asked for his help." More>>

ALSO:

Auckland: St. Jerome's Laneway Festival - Line-Up Announced

Traversing seven cities and three countries, the festival has well and truly settled into its home in each state. From the grassy knolls and towering silos at home in Auckland, to the sparkling backdrop of the Maribyrnong... More>>

Scoop Review Of Books: No Longer An Island

Simon Nathan reviews 'Zealandia: Our Continent Revealed': The idea that New Zealand is part of a large submerged continent is not new... There was renewed interest in the extent of offshore New Zealand from the 1970s onwards with the start of offshore drilling for oil and gas, and this was given impetus by a UN agreement which allowed countries to claim an Extended Continental Shelf (ECS). More>>

Art: Simon Denny Recreates Kim Dotcom’s Personal Effects

Who owns what? How has the internet changed our relation to the world? These are two of the many questions Simon Denny raises in the latest exhibition at the Adam Art Gallery, opening on Saturday 4 October. More>>

ALSO:

Get More From Scoop

 
 

LATEST HEADLINES

 
 
 
 
Health
Search Scoop  
 
 
Powered by Vodafone
NZ independent news