News Video | Policy | GPs | Hospitals | Medical | Mental Health | Welfare | Search

 


Judy Bailey helps make a WORLD of difference

Judy Bailey helps make a WORLD of difference for Muscle Wasting Disease

The Muscular Dystrophy Association are proud to once again be supported by Judy Bailey for its annual bow tie appeal (22-30th March). Judy will appear alongside MDA member, Nicholas Brockelbank who lives with Duchenne Muscular Dystrophy. Judy and Nic will feature on the national television, radio and print campaign which the MDA hopes will bring greater awareness to these rare conditions. “My long relationship with the association came about because of my son's childhood friend who has Muscular Dystrophy. It was this relationship that drove me to get involved and help progress the cause in New Zealand”, says Judy.

The MDA uses the image of a bow tie to demonstrate the difficulties our members face doing many everyday tasks. The exclusively designed bow tie pins are available in all WORLD stores, as well as ASB branches nationwide for a gold coin donation. There will also be boxes and collections throughout the country.

The Association needs this campaign to be a success, people diagnosed with these rare neuromuscular conditions have no one to turn to, and quite often even their GPs know very little about these conditions. The MDA offers people affected one on one support, specialist information, counseling and advocacy, to name just a few of the things it does.

The MDA’s biggest challenge is awareness of the association itself and wasting muscle disease. Awareness is so low getting the much needed support to provide these vital services through donations is incredibly difficult. “We are competing against much bigger causes and it’s hard to have the voice we need for our clients”, says MDA Information and Resource Manager, Jayne McLean.

Nicholas’s condition, Duchenne Muscular Dystrophy is a serious and debilitating form of muscle disease. It’s caused by the absence of the protein dystrophin, causing muscles to deteriorate and break down. As well as arm and leg muscles, the muscles involved in breathing become very weak and it also affects the muscles of the heart.

People like Nicholas and his family need ongoing support, specialist information and for someone to step up and be the voice for them and others with muscle wasting diseases – so it’s one less battle they have to face, one less thing they have to think about.

Right now there is no cure and the treatments available have limited effects. There is so much work that needs to be done in this field. Muscular Dystrophy and other neuromuscular conditions are unpredictable and incurable. They can affect anybody, at any age. These disabling conditions are often genetic and sometimes occur more than once in a family, however often there is no previous family history.

There is hope for life saving treatments on the horizon. Since the human genome was mapped there have been many research initiatives undertaken to understand and treat muscle wasting disease. However as we are learning, the cost of any resulting treatments will be likely to be so expensive that government funding agency Pharmac is unlikely to fund them, largely because these are rare conditions. The MDA needs to be ready and able to fight this cause for our clients now and in the future but rely heavily on donations to do this.

It’s simple to help this bow tie week, you can text ‘bowtie’ to 4483 to donate $3, call 0900 426 98 to make an automatic $15 donation, or donate securely online at www.mda.org.nz.

~end~

© Scoop Media

 
 
 
 
 
Culture Headlines | Health Headlines | Education Headlines

 

Free Diving: William Trubridge Breaks World Record

With just a single breath, New Zealand free diver William Trubridge has successfully broken his own unassisted free dive world record of 101 metres. More>>

ALSO:

RLWC 2017 Draw: New Zealand Set For A Festival Of Rugby League

New Zealand Rugby League fans will have the chance to see the Kiwis in action against the best in the Pacific region for the Rugby League World Cup 2017, as announced today at the Official Tournament Draw. More>>

ALSO:

Non-Pokemon News: Magical Park A Safer Augmented Reality For Younger Audiences

Since May, Wellington City Council has been trialling a new app, Magical Park, in collaboration with the game’s New Zealand developer Geo AR Games, in parks around the city. Magical Park uses GPS technology to get users moving around the park to play within a set boundary. More>>

'Erroneous': Pokemon App Makers On Huge Privacy Flaw

We recently discovered that the Pokémon Go account creation process on iOS erroneously requests full access permission for the user's Google account... More>>

ALSO:

Te Wiki O Te Reo: Te Reo Māori Is For All New Zealanders — Minister

Minister for Māori Development Te Ururoa Flavell welcomes the start of Māori Language Week today and invites all New Zealanders to give speaking te reo Māori a go. More>>

ALSO:

Get More From Scoop

 
 

LATEST HEADLINES

 
 
 
 
Health
Search Scoop  
 
 
Powered by Vodafone
NZ independent news