News Video | Policy | GPs | Hospitals | Medical | Mental Health | Welfare | Search

 


Speak out: Create Change by marking World Haemophilia Day

Speak out: Create Change by marking World Haemophilia Day on April 17

Christchurch, 17 April 2014 - An estimated 6.9 million people have a bleeding disorder, yet 75 percent of them don’t know it. Every year on April 17, World Haemophilia Day is observed around the world to increase awareness of haemophilia and other inherited bleeding disorders. This is a critical effort with an ultimate goal of ensuring better diagnosis and access to care for the millions who have a rare bleeding disorder yet remain without treatment.

In 2014, World Haemophilia Day will focus on encouraging the global bleeding disorders community to Speak out. Create change. This year we are making a particular effort to reach out to young members of the community so as to promote their participation and to develop strong leadership. We want our young members to feel inspired to assume key roles in building and supporting the bleeding disorder community.

World Haemophilia Day provides a unique opportunity for our community to connect locally, and globally, and to take action. The Haemophilia Foundation of New Zealand Inc. (HFNZ) is taking the opportunity to launch a new website (www.haemophilia.org.nz) to make it easier to find out information about bleeding disorders and HFNZ events, such as the upcoming Youth Leadership Weekend.

For World Haemophilia Day 2014, HFNZ are also will be organizing a number of local activities for members, including an awareness booth at the night market in Hamilton on 17 April.

In New Zealand, there are around 430 people diagnosed with haemophilia and 200 with von Willebrand disorder. HFNZ’s members are all unique but they have one thing in common – being part of the bleeding disorder community. HFNZ creates ways to unify this community and assist those affected by bleeding disorders.

Join the international bleeding disorders community on April 17 to mark World Haemophilia Day. Speak out: Create change.

To learn more about haemophilia and other inherited bleeding disorders, visitwww.haemophilia.org.nz

About haemophilia and other bleeding disorders
Haemophilia, von Willebrand disorder, inherited platelet disorders, and other factor deficiencies are lifelong bleeding disorders that prevent blood from clotting properly. People with bleeding disorders do not have enough of a particular clotting factor, a protein in blood that controls bleeding, or else it does not work properly. The severity of a person’s bleeding disorder usually depends on the amount of clotting factor that is missing or not functioning. People with haemophilia can experience uncontrolled bleeding that can result from a seemingly minor injury. Bleeding into joints and muscles causes severe pain and disability while bleeding into major organs, such as the brain, can cause death.

About Haemophilia Foundation of New Zealand Inc. (HFNZ)
HFNZ is a charitable organisation dedicated to improving the lives of all people with haemophilia, von Willebrand disorder and related disorders and their families/whanau. Established in 1958, they provide support and education to people with bleeding disorders and their families in New Zealand and represent the haemophilia population to health services and the government. For more information on HFNZ and haemophilia visit www.haemophilia.org.nz

ENDS

© Scoop Media

 
 
 
 
 
Culture Headlines | Health Headlines | Education Headlines

 
Werewolf: Katniss Joins The News Team

From the outset, the Hunger Games series has dwelt obsessively on the ways that media images infiltrate our public and personal lives... From that grim starting point, Mockingjay Part One takes the process a few stages further. There is very little of the film that does not involve the characters (a) being on screens (b) making propaganda footage to be screened and (c) reacting to what other characters have been doing on screens. More>>

ALSO:

Scoop Review Of Books: Ko Witi Te Kaituhituhi

Witi Ihimaera, the distinguished Māori author and the first Māori to publish a book of short stories and a novel, has adopted a new genre with his latest book. But despite its subtitle, this book is a great deal more than a memoir of childhood. More>>

Werewolf: Rescuing Paul Robeson

Would it be any harder these days, for the US government to destroy the career of a famous American entertainer and disappear them from history – purely because of their political beliefs? You would hope so. In 1940, Paul Robeson – a gifted black athlete, singer, film star, Shakespearean actor and orator – was one of the most beloved entertainers on the planet. More>>

ALSO:

"Not A Competition... A Quest": Chapman Tripp Theatre Award Winners

Big winners on the night were Equivocation (Promising Newcomer, Best Costume, Best Director and Production of the Year), Kiss the Fish (Best Music Composition, Outstanding New NZ Play and Best Supporting Actress), and Watch (Best Set, Best Sound Design and Outstanding Performance). More>>

ALSO:

Film Awards: The Dark Horse Scores Big

An inspirational film based on real life Gisborne speed-chess coach An inspirational film based on real life Gisborne speed-chess coach Genesis Potini, made all the right moves to take out top honours along with five other awards at the Rialto Channel New Zealand Film Awards - nicknamed The Moas. More>>

ALSO:

Theatre: Ralph McCubbin Howell Wins 2014 Bruce Mason Award

The Bruce Mason Playwriting Award was presented to Ralph McCubbin Howell at the Playmarket Accolades in Wellington on 23 November 2014. More>>

ALSO:

One Good Tern: Fairy Tern Crowned NZ Seabird Of The Year

The fairy tern and the Fiji petrel traded the lead in the poll several times. But a late surge saw it come out on top with 1882 votes. The Fiji petrel won 1801 votes, and 563 people voted for the little blue penguin. More>>

Music Awards: Lorde Reigns Supreme

Following a hugely successful year locally and internationally, Lorde has done it again taking out no less than six Tuis at the 49th annual Vodafone New Zealand Music Awards. More>>

ALSO:

Get More From Scoop

 
 

LATEST HEADLINES

 
 
 
 
Health
Search Scoop  
 
 
Powered by Vodafone
NZ independent news