News Video | Policy | GPs | Hospitals | Medical | Mental Health | Welfare | Search

 


Speak out: Create Change by marking World Haemophilia Day

Speak out: Create Change by marking World Haemophilia Day on April 17

Christchurch, 17 April 2014 - An estimated 6.9 million people have a bleeding disorder, yet 75 percent of them don’t know it. Every year on April 17, World Haemophilia Day is observed around the world to increase awareness of haemophilia and other inherited bleeding disorders. This is a critical effort with an ultimate goal of ensuring better diagnosis and access to care for the millions who have a rare bleeding disorder yet remain without treatment.

In 2014, World Haemophilia Day will focus on encouraging the global bleeding disorders community to Speak out. Create change. This year we are making a particular effort to reach out to young members of the community so as to promote their participation and to develop strong leadership. We want our young members to feel inspired to assume key roles in building and supporting the bleeding disorder community.

World Haemophilia Day provides a unique opportunity for our community to connect locally, and globally, and to take action. The Haemophilia Foundation of New Zealand Inc. (HFNZ) is taking the opportunity to launch a new website (www.haemophilia.org.nz) to make it easier to find out information about bleeding disorders and HFNZ events, such as the upcoming Youth Leadership Weekend.

For World Haemophilia Day 2014, HFNZ are also will be organizing a number of local activities for members, including an awareness booth at the night market in Hamilton on 17 April.

In New Zealand, there are around 430 people diagnosed with haemophilia and 200 with von Willebrand disorder. HFNZ’s members are all unique but they have one thing in common – being part of the bleeding disorder community. HFNZ creates ways to unify this community and assist those affected by bleeding disorders.

Join the international bleeding disorders community on April 17 to mark World Haemophilia Day. Speak out: Create change.

To learn more about haemophilia and other inherited bleeding disorders, visitwww.haemophilia.org.nz

About haemophilia and other bleeding disorders
Haemophilia, von Willebrand disorder, inherited platelet disorders, and other factor deficiencies are lifelong bleeding disorders that prevent blood from clotting properly. People with bleeding disorders do not have enough of a particular clotting factor, a protein in blood that controls bleeding, or else it does not work properly. The severity of a person’s bleeding disorder usually depends on the amount of clotting factor that is missing or not functioning. People with haemophilia can experience uncontrolled bleeding that can result from a seemingly minor injury. Bleeding into joints and muscles causes severe pain and disability while bleeding into major organs, such as the brain, can cause death.

About Haemophilia Foundation of New Zealand Inc. (HFNZ)
HFNZ is a charitable organisation dedicated to improving the lives of all people with haemophilia, von Willebrand disorder and related disorders and their families/whanau. Established in 1958, they provide support and education to people with bleeding disorders and their families in New Zealand and represent the haemophilia population to health services and the government. For more information on HFNZ and haemophilia visit www.haemophilia.org.nz

ENDS

© Scoop Media

 
 
 
 
 
Culture Headlines | Health Headlines | Education Headlines

 

Eddie Izzard: UK Comedy Legend Returns

Hailed as one of the foremost stand up comedians of his generation. Star of stage and screen. Tireless supporter of charity. Runner. Political campaigner. Fashion Icon... February 2015, Eddie Izzard will bring his massive FORCE MAJEURE world tour to New Zealand with tickets going on sale at 10am on Tuesday 28th October. More>>

Festival Starts 28 Oct: Improv Fest Makes Up New Show

For any other festival, finding out less than two weeks from showtime that half the cast of a programmed show can’t make it to New Zealand would be a nightmare. Instead, the New Zealand Improv Festival Director Jennifer O’Sullivan saw an opportunity ... More>>

NZ Music Awards Finalists: Lorde, Sol3 Mio Top 2014 Tuis Charge

Lorde has taken the music world by storm during the past year and she co-leads the 2014 Tui charge with five finalist spots. Joining her is newcomer family opera trio, Sol3 Mio. They are followed closely by Ladi6 and David Dallas, both up for four awards each. More>>

From 'Luther' Creator: Major New Zealand Crime Series For BBC

Libertine Pictures and writer Neil Cross have teamed up with leading international TV producer Carnival Films to develop a major new crime series set in Rotorua. Libertine will develop the contemporary drama series with Carnival, producer of internationally-acclaimed British period drama Downton Abbey, for the BBC. More>>

ALSO:

Family Statement: Death Of Ewen Gilmour

“Ewen was a much loved and cherished member of our family, he was a larger than life character and by his very nature was kind, generous and always giving of his time to those who asked for his help." More>>

ALSO:

Auckland: St. Jerome's Laneway Festival - Line-Up Announced

Traversing seven cities and three countries, the festival has well and truly settled into its home in each state. From the grassy knolls and towering silos at home in Auckland, to the sparkling backdrop of the Maribyrnong... More>>

Scoop Review Of Books: No Longer An Island

Simon Nathan reviews 'Zealandia: Our Continent Revealed': The idea that New Zealand is part of a large submerged continent is not new... There was renewed interest in the extent of offshore New Zealand from the 1970s onwards with the start of offshore drilling for oil and gas, and this was given impetus by a UN agreement which allowed countries to claim an Extended Continental Shelf (ECS). More>>

Art: Simon Denny Recreates Kim Dotcom’s Personal Effects

Who owns what? How has the internet changed our relation to the world? These are two of the many questions Simon Denny raises in the latest exhibition at the Adam Art Gallery, opening on Saturday 4 October. More>>

ALSO:

Get More From Scoop

 
 

LATEST HEADLINES

 
 
 
 
Health
Search Scoop  
 
 
Powered by Vodafone
NZ independent news