News Video | Policy | GPs | Hospitals | Medical | Mental Health | Welfare | Search

 


Ann Andrews QSM author of Positively Parkinsons

Liam Butler interviews Ann Andrews QSM author of Positively Parkinson’s

15 July 2014


Positively Parkinson's

Symptoms & Diagnosis, Research & Treatment, Advice & Support

$35 plus $5 postage and handling pp 176 www.calicopublishing.co.nz/book/positively-parkinsons

Question one.

Ann you live with Parkinson's and have written an insightful guide written in a confident and warm manner. How do you suggest people learn the most from their visits to their Doctors?

If you have recently been diagnosed with Parkinson's you have probably been to see a neurologist. From this time on you will have two doctors in your life, the neurologist and your GP. Your GP will be the one you mostly see, you will only see your neurologist once or twice a year. Regardless of which doctor you visit about your Parkinson's I suggest you go well prepared. Take a friend or partner if that helps, their job is to take notes for you. Prior to the visit write down the questions you need answering, all the things that worry you, no matter how trivial they might sound. This written copy of the visit means you can be certain you've asked everything you wanted to. Should you be introduced to a drug programme make sure you understand the drugs prescribed, then for the next month keep a diary of how you feel each day. This will help make your GP aware of any problems you might be having.

Question two.

Parkinson's requires complex care planning. What are some tips for people who need to lobby hard to get the care they need?

I'm not sure what you mean by complex care. Most people I know get help from a partner, friend or child. After sixteen years I still do the cooking and cleaning. My husband does the vacuuming. I am part of the health board system and have been accessed by a gerontology nurse. I have a walker and a stick and a step for my shower. I can have a carer to accompany me on walks sit and talk to me be there when I shower, but I don't need that. We contacted Needs assessment at the Auckland DHB.

Question three.

Family and friends are often inspired to get fit based on the determination required by people with Parkinson's to cope well with the disease. How can this courageous behaviour inspire others?

My husband was already a life time jogger and I've encouraged him to keep this up. For myself I prefer Pilates exercise and walking.

Question four.

Parkinson's can cause significant stress on relationships. What can be done to keep relationships healthy?

I haven't noticed too much stress. The main thing I think would be if a partner began to take over speaking and acting for the person with Parkinson's. I have noticed that nurses caring for people with Parkinson's in homes for the elderly quite often don't understand the complaint at all. They are inclined to not see the patient as an intelligent individual because their voice is too soft and they take small steps. There is a need for raising more awareness in the wider neighbourhood of everyone who comes into contact with anyone who has Parkinson's.

Question five.

This election year what would you like political parties to address pertaining to Parkinson's?

I don't think Parkinson's is a political problem. There is a society that should lobby for us and encourage research.

Dr Barry Snow, Neurologist on Positively Parkinson's...

There is a saying in Parkinson's disease medicine that when you have seen one person with Parkinson's disease, you have seen one person with Parkinson's disease. Parkinson's is a complex and intensely personal disease. Each person, patient, carer or health professional is affected in different ways, and each person has a story to tell. I have been working now for 25 years with people with Parkinson's disease, and not a week goes by when I don't learn something new. I am repeatedly reminded that each person has a unique version of the disease.

There is so much to learn and so much to know about living with the condition. There is also a bewildering amount of information in books and on the internet. Much of this information is impersonal, clinical and of uncertain relevance to someone coming to terms with their own version of a variable condition.

Ann has her own story of Parkinson's, and here she has shared stories of others. Each is important, each is relevant and each deserves to be heard. My congratulations to Ann for taking on this task. I hope everyone values reading this book as much as I have.

Dr Barry Snow, Neurologist MBChB, FRACP, FRCPC

What others think of Positively Parkinson's...

‘I tell people who ask me about Parkinson's that it isn't the end of the world. You have to adapt your life to it. Everyone who has Parkinson's should read this book. It should be their bible. It's inspiring, reassuring and easy to follow.' Sir John Walker, Olympic Champion

‘Ann Andrews presents this serious and often overwhelming subject in an informative and engaging way, with warmth and good humour. Her insights into her personal journey with Parkinson's are generous in their honesty and sensitivity.' Deirdre O'Sullivan, CEO Parkinson's New Zealand

‘Until medical science finds a cure, people with Parkinson's have to learn how to cope with the disease, and this book will help. It is a must-read for anyone with Parkinson's and for their family and friends.' Max Ritchie, Executive Director Neurological Foundation of New Zealand

You can go into the draw to win a copy of this great book, Just CLICK HERE

Competition closes 29th July 2014. Open to NZ residents only


© Scoop Media

 
 
 
 
 
Culture Headlines | Health Headlines | Education Headlines

 
Scoop Review Of Books: The Typewriter Factory

I finished reading Don’t Dream It’s Over not long after it came out last August. I even started writing a review, which took something of an ‘I’m sorry people, but it’s already over’ approach. I’ve been pretty negative about journalism as it’s practiced in the mainstream (or MSM, or corporate media or liberal media or whatever terminology you prefer) for quite some time (see for example Stop the Press), and I believe the current capitalist media model is destructive and can’t be reformed. More>>

Sheep Update: Solo World Shearing Record Broken In Southland

Southland shearer Leon Samuels today set a new World solo eight-hours strongwool ewe-shearing after a tally of 605 in a wool shed north of Gore. More>>

ALSO:

Howard Davis Review: Dick Frizzell At The Solander Gallery

One of the most influential and celebrated contemporary Pop artists working in New Zealand, Dick Frizzell is mostly known for his appropriation of kitsch Kiwiana icons, which he often incorporates into cartoon-like paintings and lithographs. Not content with adhering to one particular style, he likes to adopt consciously unfashionable styles of painting, in a manner reminiscent of Roy Lichtenstein. More>>

Old Music: Pop Icon Adam Ant Announces NZ Tour

Following his recent sold out North American and UK tours, Adam Ant is celebrating the 35th anniversary of the release of his landmark KINGS OF THE WILD FRONTIER album with a newly-remastered reissue (Sony Legacy) and Australasian tour. More>>

Scoop Review Of Books:
Looking Back

Writing a memoir that appeals to a broad readership is a difficult undertaking. As an experienced communicator, Lloyd Geering keeps the reader’s interest alive through ten chapters (or portholes) giving views of different aspects of his life in 20th-century New Zealand. More>>

Scoop Review Of Books: Purple (and Violet) Prose

This is the second recent conjoint publication by Reeve and Stapp; all to do with esoteric, arcane and obscure vocabulary – sesquipedalian, anyone – and so much more besides. Before I write further, I must stress that the book is an equal partnership between words and images and that one cannot thrive without the other. More>>

Get More From Scoop

 
 

LATEST HEADLINES

 
 
 
 
Health
Search Scoop  
 
 
Powered by Vodafone
NZ independent news