News Video | Policy | GPs | Hospitals | Medical | Mental Health | Welfare | Search

 


Ann Andrews QSM author of Positively Parkinsons

Liam Butler interviews Ann Andrews QSM author of Positively Parkinson’s

15 July 2014


Positively Parkinson's

Symptoms & Diagnosis, Research & Treatment, Advice & Support

$35 plus $5 postage and handling pp 176 www.calicopublishing.co.nz/book/positively-parkinsons

Question one.

Ann you live with Parkinson's and have written an insightful guide written in a confident and warm manner. How do you suggest people learn the most from their visits to their Doctors?

If you have recently been diagnosed with Parkinson's you have probably been to see a neurologist. From this time on you will have two doctors in your life, the neurologist and your GP. Your GP will be the one you mostly see, you will only see your neurologist once or twice a year. Regardless of which doctor you visit about your Parkinson's I suggest you go well prepared. Take a friend or partner if that helps, their job is to take notes for you. Prior to the visit write down the questions you need answering, all the things that worry you, no matter how trivial they might sound. This written copy of the visit means you can be certain you've asked everything you wanted to. Should you be introduced to a drug programme make sure you understand the drugs prescribed, then for the next month keep a diary of how you feel each day. This will help make your GP aware of any problems you might be having.

Question two.

Parkinson's requires complex care planning. What are some tips for people who need to lobby hard to get the care they need?

I'm not sure what you mean by complex care. Most people I know get help from a partner, friend or child. After sixteen years I still do the cooking and cleaning. My husband does the vacuuming. I am part of the health board system and have been accessed by a gerontology nurse. I have a walker and a stick and a step for my shower. I can have a carer to accompany me on walks sit and talk to me be there when I shower, but I don't need that. We contacted Needs assessment at the Auckland DHB.

Question three.

Family and friends are often inspired to get fit based on the determination required by people with Parkinson's to cope well with the disease. How can this courageous behaviour inspire others?

My husband was already a life time jogger and I've encouraged him to keep this up. For myself I prefer Pilates exercise and walking.

Question four.

Parkinson's can cause significant stress on relationships. What can be done to keep relationships healthy?

I haven't noticed too much stress. The main thing I think would be if a partner began to take over speaking and acting for the person with Parkinson's. I have noticed that nurses caring for people with Parkinson's in homes for the elderly quite often don't understand the complaint at all. They are inclined to not see the patient as an intelligent individual because their voice is too soft and they take small steps. There is a need for raising more awareness in the wider neighbourhood of everyone who comes into contact with anyone who has Parkinson's.

Question five.

This election year what would you like political parties to address pertaining to Parkinson's?

I don't think Parkinson's is a political problem. There is a society that should lobby for us and encourage research.

Dr Barry Snow, Neurologist on Positively Parkinson's...

There is a saying in Parkinson's disease medicine that when you have seen one person with Parkinson's disease, you have seen one person with Parkinson's disease. Parkinson's is a complex and intensely personal disease. Each person, patient, carer or health professional is affected in different ways, and each person has a story to tell. I have been working now for 25 years with people with Parkinson's disease, and not a week goes by when I don't learn something new. I am repeatedly reminded that each person has a unique version of the disease.

There is so much to learn and so much to know about living with the condition. There is also a bewildering amount of information in books and on the internet. Much of this information is impersonal, clinical and of uncertain relevance to someone coming to terms with their own version of a variable condition.

Ann has her own story of Parkinson's, and here she has shared stories of others. Each is important, each is relevant and each deserves to be heard. My congratulations to Ann for taking on this task. I hope everyone values reading this book as much as I have.

Dr Barry Snow, Neurologist MBChB, FRACP, FRCPC

What others think of Positively Parkinson's...

‘I tell people who ask me about Parkinson's that it isn't the end of the world. You have to adapt your life to it. Everyone who has Parkinson's should read this book. It should be their bible. It's inspiring, reassuring and easy to follow.' Sir John Walker, Olympic Champion

‘Ann Andrews presents this serious and often overwhelming subject in an informative and engaging way, with warmth and good humour. Her insights into her personal journey with Parkinson's are generous in their honesty and sensitivity.' Deirdre O'Sullivan, CEO Parkinson's New Zealand

‘Until medical science finds a cure, people with Parkinson's have to learn how to cope with the disease, and this book will help. It is a must-read for anyone with Parkinson's and for their family and friends.' Max Ritchie, Executive Director Neurological Foundation of New Zealand

You can go into the draw to win a copy of this great book, Just CLICK HERE

Competition closes 29th July 2014. Open to NZ residents only


© Scoop Media

 
 
 
 
 
Culture Headlines | Health Headlines | Education Headlines

 

Review: “Salute” By Royal New Zealand Ballet In Wellington

The Royal New Zealand Ballet performed “Salute” for a final time in Wellington on Sunday night, and it was nothing short of spectacular. More>>

ALSO:

NZ on Air: More Funding For TV Captions To Increase Access

More funding for TV captions to increase access NZ On Air has increased funding to provide more captions and audio description on television programmes for the hearing and sight impaired. More>>

Music: So Laid Back Country China Album Release

On Friday night, So Laid Back Country China held a gig at Meow for the release of their new album With Knees of Honey in Goodbye Canyon. I briefly spoke with Harriet lead vocals, keyboard) and Michael (lead vocals, guitar) before the gig More>>

Art: Wellington Region Celebrates Matariki

Eight Wellington museums and galleries have joined forces to present a major programme of exhibitions and events to celebrate Matariki 2015, the Māori New Year. The Wellington Matariki Festival will host more than 60 free events and activities between Saturday ... More>>

Wellington: TEDxWellingtonWomen Speakers Unveiled

The lineup is announced today for the highly anticipated upcoming event TEDxWellingtonWomen. Speakers include local women and men who have lived extraordinary lives and have ideas worth spreading. More>>


Books: Witi Ihimaera To Address ‘State Of NZ Literature’at Festival

6 May 2015 MEDIA RELEASE Witi Ihimaera to Address ‘State of NZ Literature’ at Dunedin Writers and Readers Festival The New Zealand Book Council has chosen the 2015 Dunedin Writers and Readers Festival as the stage for its annual address, which ... More>>

Culture: Historic Māori Portraits Travel To The Czech Republic

Image credit: Gottfried Lindauer, Wahanui Reihana Te Huatare, oil on canvas, Auckland Art Gallery Toi o Tāmaki, gift of Mr H E Partridge, 1915 More>>

Art: Something Felt, Something Shared - Enjoy

Gabrielle Amodeo, Ruby Joy Eade, Clare McLean, Kalya Ward Curated by Emma Ng May 7 – 30, 2015 Opening: Wednesday May 6, 5.30pm Strange frequencies are channelled through personal narratives and poetic placeholders in Something felt, something ... More>>

Culture: Pukeahu Park ANZAC Day Commemoration 2015

Pukeahu Park ANZAC Day Commemoration 2015 Images from New Zealand Defence Force Click for big version A bugler plays The Last Post Click for big version A View from the top of the Carillion Click for big version Faces old and young Click for big ... More>>

Television: MediaWorks Announces Dancing With The Stars Hosts

MediaWorks and BBC Worldwide ANZ are delighted to announce host Dominic Bowden alongside co-host Sharyn Casey for the hit series Dancing with the Stars. More>>

Get More From Scoop

 
 

LATEST HEADLINES

 
 
 
 
Health
Search Scoop  
 
 
Powered by Vodafone
NZ independent news