News Video | Policy | GPs | Hospitals | Medical | Mental Health | Welfare | Search

 


Children to Learn to Eat And Drink Again


Media Release
20 August 2014

For immediate release


Children to Learn to Eat And Drink Again through Groundbreaking Starship Pilot Programme

Programme funded by Starship Foundation new Five Star Sponsor New World


A groundbreaking pilot programme has just been launched at Starship Children’s Hospital, which aims to help hundreds of children get off feeding tubes, and learn to eat and drink again.

The trial Hunger Provocation Programme started at the national children’s hospital on 18 August. The $45,000 needed for the programme is being funded by New Zealand-owned supermarket New World, which today announced it has come on board as the Starship Foundation’s newest five star sponsor.

Around 70 children each year are discharged from Starship with a feeding tube still in place, requiring their parents or caregivers to continue to give their child liquid feeds through a tube that is either inserted through their nose or surgically inserted into their stomach. It is estimated there are currently more than 600 tube-fed children in New Zealand, with 1 in 4 identified as being appropriate for tube weaning.

While in hospital children may need to be fed via a tube for a variety of medical conditions, including prematurity, metabolic disease and heart defects. Unfortunately there are a number of children who, despite resolution of the medical condition, become dependent on the tube and unable to return to oral foods despite the physical ability to do so. In some cases tube dependency can be life long.

“These tube-fed children may not learn the oral motor and sensory skills needed to eat and miss out on the social aspect of mealtimes. As a result, some children will refuse to eat or drink. They rely on the tube for all their nutrition despite no longer having a medical requirement for it,” says Mandy Beatson, Starship Paediatric Speech Language Therapist. “The Hunger Provocation Programme at Starship is the first step towards ensuring these children are provided the support and opportunity to live more normal lives where they can eat and drink for themselves.”

There is currently no such programme in New Zealand, with the only option for parents to either travel abroad for treatment, attempt on-line supervision, or pay around $25,000 for an overseas therapist to try to manage the complex feeding programme in the child’s home without medical support.

A one-off trial was successfully completed at Starship with five year-old Thomas Morrison last year, and four more patients have just been selected for the roll out of the programme this month. Each patient is required to attend an outpatient assessment followed by a three week daystay programme with intensive daily input from a primary consultant, dietitian, clinical psychologist, occupational therapist, speech therapist and nurse.

“It’s changed our lives. I was out with Thomas shortly after completing the course. It was time for morning tea and I didn't have the feed pump or anything for him. I just popped into the supermarket, bought a banana and mashed it up,” says Thomas’s mother, Louise Morrison. “It was so lovely to finally have a normal experience with food, and to be able to cook for my son is amazing. Thomas is now at school and is able to go and eat with his classmates at lunchtime instead of just sitting there doing nothing with his pump going,”

Three year-old Nakiyah Reid travelled from her home in Wellington to begin the three-week programme on 18 August. As a baby she had an inverted jaw, found it hard to latch with breastfeeding had severe reflux and failed to thrive. She has relied on a feeding tube to sustain her since she was born. “I’m super excited about the trial,” says Nakiyah’s mother Shoni Reid. “I have dreamed about this day for so long. It has been such a huge stress on us. She deserves to eat like her sisters. To have my baby eating means the world to me.”

Although New World is now formally on board with Starship, it is not the first time the organisation has had a positive impact within the hospital. The supermarket’s hugely popular “Little Shop” promotional mini food items were used by Starship’s Consult Liaison Team in the treatment of children with extreme food anxiety problems caused by problems such as food allergies or oral aversion.

“We are thrilled to be able to become a key sponsor of Starship. To have a national clinical resource available to make a real difference to Kiwi children and their families is invaluable. We know without the support of organisations like New World initiatives such as the trial Hunger Provocation Programme wouldn’t be able to happen. We are pleased that our sponsorship means we are helping Kiwi families,” says Steve Anderson, Managing Director New World.

Also as part of its new partnership with the Starship Foundation, New World is providing weekly fresh fruit baskets onto the wards at the national children’s hospital, for parents and caregivers to enjoy.

“We are so grateful to New World for their generosity to Starship and for supporting the work we do to care for New Zealand children and their families,” says Ms Beatson.

ENDS

© Scoop Media

 
 
 
 
 
Culture Headlines | Health Headlines | Education Headlines

 

Gordon Campbell: Classics - Tales From Moominvalley
Can’t speak for the reading end of it but the Moomins ( or maybe the story about Margaret Wise Brown) were the most enjoyable subject to think about and write about during these whole first 50 issues of Werewolf. For that reason – and because the Moomins always reward re-reading – I’ve decided to reprint it. The only added element is a link to an interesting hour long documentary about Tove Jansson. More>>

ALSO:

Repping In The Pacific: All Blacks And Manu Samoa To Play Historic Apia Test

The All Blacks will play Manu Samoa in Apia on Wednesday 8 July next year as part of both teams’ preparations for Rugby World Cup 2015. More>>

ALSO:

Monarchy: Duke And Duchess Of Cambridge Are Expecting Second Child

Their Royal Highnesses The Duke and Duchess of Cambridge are very pleased to announce that The Duchess of Cambridge is expecting their second child. More>>

ALSO:

2015: Elton John Plans Wellington Show

After nine years, Elton John and his band will return to Westpac Stadium, Wellington for one spectacular concert! The November 21, 2015 concert will feature iconic hits and classic album tracks from throughout his incredible five-decade career... More>>

Book Awards: Jill Trevelyan's Story Of Peter McLeavey Is Book Of The Year

The story of Wellington art dealer Peter McLeavey and his gallery has won the prestigious New Zealand Post Book of the Year 2014 in a glittering ceremony in Wellington. More>>

ALSO:

Scoop Review Of Books: King Richard

Simon Nathan reviews 'Richard Seddon, King of God’s Own': My father grew up in Wellington during Seddon’s premiership... I can recall him standing under the Seddon statue in the grounds of parliament and telling me that Seddon had more backbone than Sid Holland and all his cabinet colleagues put together.. More>>

8 October: Miley Cyrus Bangerz Tour Coming To Auckland!

Dainty Group announced today that global superstar Miley Cyrus will bring her BANGERZ TOUR to New Zealand in October this year. This will be Miley’s first ever visit to New Zealand and there will only be one Auckland show before she takes her tour to Australia. More>>

ALSO:

Music: Lorde NZ Tour Confirmed In Four Major Cities!

In what will be her first ever New Zealand headline tour, Frontier Touring and Brent Eccles Entertainment are stoked to bring you four epic shows across the country! The all ages concerts take place late October/ early November in Christchurch, Dunedin, Wellington and Auckland. More>>

ALSO:

Get More From Scoop

 
 

LATEST HEADLINES

 
 
 
 
Health
Search Scoop  
 
 
Powered by Vodafone
NZ independent news