News Video | Policy | GPs | Hospitals | Medical | Mental Health | Welfare | Search


Ministry of Health survey improves understanding of epilepsy

26 March 2018

The Ministry of Health recognises the challenges that people living with epilepsy face and is working to understand the condition better.

To help raise awareness of epilepsy and mark Epilepsy New Zealand’s ‘Purple Day’ campaign, the Ministry of Health is releasing the findings of its first Epilepsy Consumer Experience Survey today.

The Ministry surveyed 276 people living with epilepsy, to understand more about their experiences with health services, support services, and in their community, school and employment situations.

“Understanding the challenges, needs and priorities of people with epilepsy, what services are working well and where we can improve, is critical to helping improve the services we provide,” says Ministry of Health group manager District Health Board (DHB) performance and support Sam Kunowski.

Epilepsy is a condition defined by recurring epileptic seizures that arise due to abnormal electrical activity in the brain. There are many causes of epilepsy and many types of seizures that can be experienced. Children and the elderly are more likely to be diagnosed with epilepsy than other age groups. Approximately 60 people die from an epilepsy-related cause each year.

“In New Zealand, approximately 40 to 50 thousand people are affected by epilepsy, with approximately 2,000 new diagnoses each year,” says Mr Kunowski. “People with epilepsy are high users of health and social services. Yet there is limited understanding of how the condition affects those living with it, or their families and whanau.”

"Some common experiences and issues highlighted by the survey included social challenges, anxiety or depression, physical injury, social isolation and being unable to drive for periods of time."

“We want to use the survey information to guide aspects of our epilepsy service model and improvement action plan. We want all people with epilepsy to live well and have access to high quality, people-centred care that is integrated across hospital and community settings,” says Mr Kunowski.

The next Epilepsy Consumer Experience survey will be conducted in three years time.

The Epilepsy Consumer Experience Survey is available to view on the Ministry of Health's website:


© Scoop Media

Culture Headlines | Health Headlines | Education Headlines


Facebook Announces New Changes: Combating Hate And Extremism

Some of these changes predate the tragic terrorist attack in Christchurch, New Zealand, but that attack, and the global response to it in the form of the Christchurch Call to Action, has strongly influenced the recent updates to our policies and their enforcement. More>>

Amazon Confirms: Lord Of The Rings Series To Shoot In NZ

Amazon Studios announced today that its series based on J.R.R. Tolkien’s iconic fantasy novels The Lord of the Rings will shoot in New Zealand. Pre-production has started, and production on the series will begin in Auckland in the coming months. More>>


Birds: Dunedin's Bells Ring As City Celebrates Its Albatross

The city's churches, schools and public buildings bells would chime in unison from 1pm, in what has been a long-standing tradition marking the return of the birds - and a farewell to this season's albatross chicks. More>>

Oscar Buzz: Waititi's Jojo Rabbit Wins People's Choice Award At Toronto

Taika Waititi's new film Jojo Rabbit has nabbed the coveted Grolsch People's Choice Award at the close of Toronto International Film Festival. More>>


Broken Estate: An Expat Expert Surveys Our Media

Melanie Bunce cut her teeth in journalism at the Otago Daily Times. Now she teaches and researches it at one of the UK’s most prestigious journalism schools and tracks the trends that shape the uncertain future of news... More>>



  • Wellington
  • Christchurch
  • Auckland