Parliament

Gordon Campbell | Parliament TV | Parliament Today | Video | Questions Of the Day | Search

 

Spinal cord impairment registry goes live

Hon Dr Jonathan Coleman
Minister of Health
Hon Nikki Kaye
Minister for ACC


1 August 2016


Spinal cord impairment registry goes live


A national registry which goes live today will lead to better services and better care and support for people living with a spinal cord impairment, say Health Minister Jonathan Coleman and ACC Minister Nikki Kaye.

“This registry will collect and record a wide range of information about people throughout their lifetime, from the moment they’re affected by a spinal cord impairment,” says Dr Coleman.

“Information captured will include demographic information, details of the cause of impairment, and details of all subsequent support received, including medical, physical, psychological and social support.

“The more information we capture, the better we can identify how people are progressing, and if they’re receiving the right treatment and support. We can also shape services to better meet people’s needs.”

The registry will be run out of Counties Manukau and Canterbury DHBs, where New Zealand’s two adult specialist spinal centres are based.

The New Zealand registry will be a satellite of the Rick Hansen Spinal Cord Injury Registry, developed in Canada.

“There’s a relatively small pool of people worldwide who are affected by spinal cord impairment, compared with other health conditions,” says Dr Coleman.

“By collaborating internationally, we can contribute to and draw on the expertise and insights being developed around the world to improve treatment and support.”

Ms Kaye, who will launch the registry this morning at Middlemore Hospital in Auckland, says this is a big step forward in ensuring that people receive the best possible care and rehabilitation.

“For the first time in New Zealand, we’ll have a more holistic approach to supporting some of our most vulnerable.

“It’s important we develop the best picture we can of the needs of people with spinal cord impairment, and we ensure services are coordinated to meet their needs.

“This new initiative is also about taking a whole-of-life approach. It will allow ongoing contact so we can keep track of how people are doing, especially as they go through different stages in life and their needs change.”

Ms Kaye says the registry is one of eight objectives being implemented as part of the New Zealand Spinal Cord Impairment Action Plan 2014 - 2019.

“Last July, along with Minister Coleman, I was pleased to launch a new policy that ensures people who’ve received a spinal cord injury receive specialist hospital attention as quickly as possible after their accident.

“Unless they need initial life-saving treatment at a nearby hospital, people with spinal cord injuries are now taken straight to one of our two specialist spinal centres, to maximise their long-term health and rehabilitation outcomes.

“The aim is for them to receive specialist hospital attention within four hours, which is international best practice.

“The registry is another step towards achieving the vision of the Action Plan to provide the best possible health and wellbeing outcomes for people with spinal cord impairment, to enhance both their quality of life and ability to participate in society.

“We know from the Canadian experience that the registry will have multiple benefits. These include improved understanding of risk factors, which will lead to better care and treatment, as well as improved understanding of injury trends which will lead to smarter injury prevention initiatives.”

Data captured by the registry will be collected by dedicated health professionals and entered into a secure web-based platform by trained registry coordinators.

Information will be collected from all consenting new spinal cord impairment patients admitted to the Auckland and Christchurch specialist spinal services.

The costs of establishing and maintaining the registry are being met by ACC and Counties Manukau and Canterbury DHBs.

A copy of the Action Plan can be found on the Ministry of Health website:
http://www.health.govt.nz/publication/new-zealand-spinal-cord-impairment-action-plan-2014-2019

ends


© Scoop Media

 
 
 
 
 
Parliament Headlines | Politics Headlines | Regional Headlines

Budget '17: Budget Spends Down Future Surpluses

Tax cuts for every working New Zealander, targeted to low and middle income earners, more generous assistance for families and renters, and a massive spend-up on public services infrastructure mark Finance Minister Steven Joyce’s election year Budget.

The package of changes to income tax thresholds, the Working for Families programme, and the Accommodation Supplement is the Budget’s political centrepiece and will cost $2 billion a year. More>>

Scoop Full Coverage: of Budget Announcements & Reaction
Latest: Scoop Search

ALSO:

 
 

Auditor-General Stands Down For Investigation: Gordon Campbell On (Not) Taking Responsibility

So Martin Matthews, our current Auditor-General wishes he could have detected “earlier” the fraud that occurred on his watch at the Ministry of Transport. Hmmm. But he could have detected it earlier, surely? That’s the point. More>>

ALSO:

NGOs Pleased: Govt To Halt Collection Of Client Data

Brenda Pilott, the chair of ComVoices and national manager of Social Service Providers Aotearoa, congratulates the government on its decision to call a halt to the collection of individual client data until the concerns of not-for-profit service providers have been worked through. More>>

ALSO:

Gosh: Blasphemy Law Repeal Struck Down

Chris Hipkins, the MP who tabled a Supplementary Order Paper to add our Blasphemy Law to the Statutes Repeal Bill, said this was a "sad day for freedom of speech, tolerance, and leadership". More>>

ALSO:

Gordon Campbell: On The Navy’s Dealings With Fat Leonard, And Twin Peaks

At an official level, our “she’ll be right” attitude routinely spills over into a keen resentment of anyone who suggests the outcomes may be less than satisfactory… The Navy has now gone one step beyond. It won’t even ask itself whether it did a good job. More>>

ALSO:

NZDF: Fifth Rotation Of Troops Heads To Iraq

The fifth rotation of New Zealand Defence Force troops left today for a six-month mission training Iraqi soldiers. More>>

ALSO:

Gordon Campbell: On The Demonising Of Iran

Will New Zealand still be willing to pursue its recent trade overtures to Iran, now that US President Donald Trump has used his speech in Riyadh to single out Iran as the main source of terrorism and instability in the Middle East? More>>

ALSO:

 
 
 
 

Opening The Election Supporters

 

LATEST HEADLINES

  • PARLIAMENT
  • POLITICS
  • REGIONAL
 
 

Featured InfoPages

Opening the Election