Video | Business Headlines | Internet | Science | Scientific Ethics | Technology | Search

 

Patient Advocacy Group Welcomes Recommendation

Patient Advocacy Group Welcomes Royal Commission's Recommendations

The New Zealand Organisation for Rare Disorders is delighted with the health and research recommendations in the report of the Royal Commission on Genetic Modification.

NZORD Executive Director, John Forman, said there is great relief among patients and their families that the Commission has rejected any restriction on access to vital medicines obtained from genetic modification technology.

"The Commission's report acknowledges the benefits to be gained from further development of such medicines, and the great potential for gene therapy and other novel therapies to treat disease.

"We are very pleased they have supported these objectives by recommending a streamlining and simplification of new research approval processes, and for the approval of new medicines produced", said Mr Forman. "That will help speed the research efforts and produce more treatments sooner.

"NZORD also welcomes the Commission's endorsement of the safety regimes governing such research, and the recommendations for reinforcement of the ethical oversight of the application of this new technology.

"Safety and ethics are of vital interest to families affected by rare and complex disorders, and the recommendations will help to ensure our and the public's confidence in the safety and beneficial application of genetic modification.

"NZORD looks forward to speedy implementation of the report by Government", Mr Forman concluded.

Ends

© Scoop Media

 
 
 
Business Headlines | Sci-Tech Headlines

 

Manawatu-Whanganui Projects: PGF Top-Up To Rural Broadband Roll-Out

The government has effectively raided the $3 billion Provincial Growth Fund to top up the budget for the second phase of its rural broadband initiative, filling in mobile 'black spots' and ensuring broadband is available to marae that don't have access now. More>>

ALSO:

Other Windy Cities: Auckland-Chicago Named A Top 10 ‘Most Exciting’ New Route

The inclusion of Auckland-Chicago on Lonely Planet’s Where to fly in 2019? The 10 most exciting new flight routes list comes just two weeks before Air New Zealand prepares to celebrate its inaugural flight to Chicago’s O’Hare International Airport on 30 November. More>>

Deadly Strain: ESR Ups Its Reporting On Meningococcal Disease

The increasing number of cases of Group W Meningococcal disease (MenW) has prompted ESR to increase its reporting on the disease to the Ministry of Health. ESR has upped its reporting to weekly. More>>

ALSO:

Very Small Things: "Game-Changing" 3D Printing Technology Launched

New Zealand microfabrication researchers Andrea Bubendorfer and Andrew Best, the co-inventors of a new way of fabricating very small things with Laminated Resin Printing (LRP), are part of Callaghan Innovation’s MicroMaker3D team launching the new patent pending technology in the US this week. More>>

ALSO: