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National database needed for cardiac rehab – survey

National database needed for cardiac rehab – survey


Cardiovascular disease is the number one killer in New Zealand, accounting for 30 per cent of all deaths annually. But a new survey shows there is a wide variety in cardiac rehabilitation services with little information on the impact of the different models.

The survey was funded by the Heart Foundation and the New Zealand Cardiovas­cular Prevention and Rehabilitation Group and conducted by researchers from Massey University’s College of Health. It revealed that one in four of 42 service providers did not regularly audit their services. This was despite guidelines recommending six-monthly audits to ensure services are on track with patient needs, and to monitor patient outcomes.

A report on the survey is calling for a national database of information to be established. It says this would give a comprehensive view of service provision and patient outcomes to assess efficacy, with the aim of learning from services that are performing most strongly and strengthening the quality of others.

Research team leader Dr Geoff Kira, from the Research Centre for Māori Health and Development at Massey, says a national database of cardiac rehabilitation services would ensure consistency of quality care measures, as well as identify areas where more funding and services might be needed.

The survey was undertaken because of; “the poor understanding of the mix and make-up of existing CR [cardiac rehabilitation] programmes across New Zealand and their alignment with evidence-based guide­lines.”

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Of 46 cardiac rehabilitation services nationwide, 86 per cent completed the survey. Results showed the programmes vary in duration from one day to 12 weeks, with an average of six weeks. Half of the services provide a weekly session. Cardiac rehabilitation is delivered in three phases: inpatient and outpatient rehabilitation, and long-term health maintenance.

Survey questions probed the following areas: structure of the units and services provided; available resources and employees; inclusion and exclusion criteria; and how services meet the needs of under-represented groups. It also asked about programme format and content, session frequency, locations, assess­ments and referral processes, as well as quality assurance including recording of attendance, and monitoring of outcomes for the third phase of rehabilitation. Research assistant Grace Humphrey, a Bachelor of Sport and Exercise (Exercise Prescription and Training), developed the draft survey, prepared the online survey tool, and followed up cardiac rehabilitation service unit
As well as variations in content and delivery of cardiac rehabilitation, the report found there was also no clear stan­dardised process guiding patient assessment, despite guidelines encouraging assessments and re-assessments in nutrition (dietetic support), smoking status, social support and anxiety or depression, as well as pre-exercise risk.

“It is uncertain whether the diversity is due to patient need or an effect of environmental influ­ences, for example, policy and funding,” the report’s authors say.

The Heart Foundation’s Heart Healthcare Manager, Kim Arcus, says cardiac rehabilitation is a vital part of recovery for heart attack patients, which is why the charity was keen to support this research.

“Cardiac rehab services in New Zealand work really hard and are doing the best with what they have. We’re actually quite comfortable with the fact that there’s an element of variety in the way programmes are being delivered. However, we’d like to see much more consistency in the way outcomes are measured,” he says.

“A national database would allow us to measure results and then compare those results to find out what’s working best. Services could learn from each other and adapt to achieve the best outcomes for patients.”

International research has found that attending cardiac rehabilitation improves health outcomes, so uptake and attendance data should be deemed essential, the report adds. Standardising and centralising unit and patient data would create an accurate profile of regional differ­ences in service provision – and this would give important understandings of how these might be linked to patient outcomes.

Dr Kira says a nationally coordinated cardiac rehabilitation service registry– such as in Europe and Britain, and being called for in Australia – would help with government policy and decision-making.

“Essentially it comes back to maximising the precious health dollar for the benefit of patients and their families, no matter where they live,” he says. “Cardiac rehab has a major role to play in getting patients back to participating in a meaningful life, whether returning to work, playing sport or being able to help out in their family or community.”
ends

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