News Video | Policy | GPs | Hospitals | Medical | Mental Health | Welfare | Search

 

NZORD - the NZ Organisation for Rare Disorders


NZORD - the New Zealand Organisation for Rare Disorders

Yes, it’s five years since the September 2000 inaugural conference that gave the mandate to set up NZORD, and set us on the path of making a difference for those disorders and conditions that usually suffer from being “below the radar screen”. It has been a challenging half-decade but there has been lots of progress made too. We are now well placed to ensure the patient/family voice is heard in health and disability consultations, and continue to develop resources for support groups.

We can't claim all the credit for the report of the Royal Commission, the National Health Committee Review of Genetic Services, the guidelines for Pre-implantation Genetic Diagnosis, the establishment of the Specialist Metabolic Service, and progress towards enhanced Newborn Metabolic Screening and folate fortification of food - but we can be satisfied that our voices were clearly heard, and the decisions so far are closely aligned to our submissions.

Click here for a summary of some of the key achievements in the past five years, extracted from our accountability reports to our funders.

© Scoop Media

 
 
 
Culture Headlines | Health Headlines | Education Headlines

 


Howard Davis: Joel Coen's Monochromatic Macbeth

The Bard of Avon may well be smirking up the sleeves of his lace doublet at the irony of Will Smith's Oscar debacle, but now that the initial furore has dissipated, it's worth revisiting the movie for which Denzel Washington was also nominated. More>>

Howard Davis: Kenneth Branagh’s Black & White Belfast

Branagh has assembled a wonderful cast, including Ciarán Hinds, a gently formidable actor who well deserves his Oscar nomination, and Judi Dench, who steals every scene she’s in. More>>


Howard Davis: Dennis Villeneuve’s Dune - A Brief History

So many elements of Herbert’s novel have since become tropes of popular SciFi that Villeneuve’s film sometimes seems deceptively derivative. What makes all this nonsense essential viewing is his astonishing visual sensibility. More>>


Howard Davis: Jill Trevelyan's Rita Angus

Although Angus has become one of Aotearoa’s best-loved painters, the story of her life remained little known and poorly understood before Jill Trevelyan's acclaimed and revelatory biography, which has been republished by Te Papa press. More>>

 
 
 
 
 
 

LATEST HEADLINES

  • CULTURE
  • HEALTH
  • EDUCATION
 
 
  • Wellington
  • Christchurch
  • Auckland