Gordon Campbell | Parliament TV | Parliament Today | News Video | Crime | Employers | Housing | Immigration | Legal | Local Govt. | Maori | Welfare | Unions | Youth | Search

 

PHARMAC Funding Increase "Extremely Disappointing"

Rare Disorders NZ is extremely disappointed with the announcement yesterday of a pre-budget boost to PHARMAC’s funding by $160 million over four years. In real terms this amount is a drop in the ocean of unmet need for adequate medicine funding in New Zealand, and will not help people living with a rare disorder. The $10 million increase for the next financial year will not even be enough to enable the status quo, considering the extra costs due to the current crisis.

We ask for transparency of the investment that would be required for PHARMAC to truly ensure equitable access of modern medicines in New Zealand in alignment with other developed countries, and we believe New Zealanders deserve a clear message about medicine funding. Is the message ‘more medicines for more people’ and securing deals for medicines for ALL New Zealanders, or simply maintaining the supply of current medicines we are having to now pay higher costs for? Sadly, the evidence points to the latter and over the next four years, people with rare disorders will continue to lose out when it comes to medicine funding.

The Covid-19 pandemic has brought the fundamental importance of health to the fore. As a compassionate society, it is shocking that there are over 100 medicines on a waiting list, despite going through the robust evidence-based assessment channels to gain approval to be funded. They languish on a long list which has no transparency of when, why or if any will be provided to the desperate patients who need them. The average wait for funded access is four years, and with rare disorders medications, sadly, this can be over 10 years. Imagine waiting to get access to a Covid-19 vaccine for that length of time?

Seventeen of the medications on the waiting list have high priority status for funding. Of these medicines, there are three for rare disorders; one, for a rare condition called Gaucher’s Disease, has been languishing on PHARMAC’s high priority list for almost nine years.

Ignoring these disturbing facts means we will stagnate as a country when it comes to access to life-changing drugs. This will impact on wellbeing and on the wider economy as the health and social costs are significant. Chronic conditions unable to be effectively treated place huge costs on the healthcare system, and often result in an inability to work, study, fulfil social obligations and participate in the community. It is a short-sighted vision with dire consequences for many New Zealanders.

For true equity and fairness, a review of PHARMAC is needed along with adequate funding at a level that aligns with other developed countries.

© Scoop Media

 
 
 
Parliament Headlines | Politics Headlines | Regional Headlines

Gordon Campbell: On The Clark Exit, Convention Centres, And The Killing Of Hachalu Hundessa


Goodbye, David Clark. In the end, the outgoing Health Minister decided that in the midst of a pandemic the best thing he could do for New Zealand would be to no longer be there – given that being there had involved hiving off on his mountain bike during a lockdown, and throwing the country’s most beloved Health bureaucrat under a bus. As Clark indicated so memorably at last week’s press conference, when it comes to managing public health risks at the border the buck stops with…that guy over there! In the aftermath of that debacle, Clark reached the same conclusion the nation had reached some time ago, that leadership just wasn’t his thing. Once again, he got on his bike.... More>>
 

Government: David Clark Resigns As Health Minister

The Prime Minister Jacinda Ardern has accepted David Clark’s resignation as Health Minister. More>>

ALSO:

Election 2020: Green Party Unveils Income Policy

The Green Party is today unveiling its Poverty Action Plan, which includes a Guaranteed Minimum Income to ensure people have enough to live with dignity. The scheme resets income support payments to ensure everyone not in full-time paid work gets at least ... More>>

ALSO:


Conservation: New Protection For Dolphins

Extensive new protections are being put in place as part of an updated plan to look after New Zealand’s native Hector’s and Māui dolphins, announced Minister of Fisheries Stuart Nash and Minister of Conservation Eugenie Sage today. More>>

ALSO:

Auckland: Water Consent Referred To Board Of Inquiry

Environment Minister David Parker has today “called in” Auckland’s application to the Waikato Regional Council to take an extra 200 million litres of water a day from the lower reaches of the Waikato River for Auckland drinking water and other municipal uses... More>>

ALSO:

Gun Law: A New Firearms System Focused On Safety

Tougher gun laws will begin to take effect from next week following the passage of new firearms legislation through Parliament today. The Minister of Police says the Third Reading of the Arms Legislation Bill is an historic milestone for community ... More>>

ALSO:

Government: Building A Stronger Health And Disability System

The Government is committing to a long-term programme of reform to build a stronger New Zealand Health and Disability System that delivers for all. More>>

ALSO:

National: Todd Muller Announces Caucus Reshuffle

Today I am confirming a minor shadow cabinet reshuffle due to the retirement of Paula Bennett. Dr Shane Reti will be ranked number 13 and will take on Associate Drug Reform. Shane has demonstrated a huge intellect and capacity for work, supporting ... More>>

Biosecurity: Winston Peters On EU Travel: 'We're Not Going To Compromise Our Country's Health'

Foreign Minister Winston Peters says New Zealanders who head to Europe on holiday should pay for their two weeks' hotel quarantine when they return. More>>

Economy: Infrastructure Investment To Create Jobs, Kick-Start COVID Rebuild

A new package of infrastructure investments will help kick-start the post-COVID rebuild by creating more than 20,000 jobs and unlocking more than $5 billion of projects up and down New Zealand. Finance Minister Grant Robertson and Infrastructure Minister ... More>>

ALSO:

Covid-19: Isolation System To Be Beefed Up After Stress

A range of improvements are already underway to address issues identified in the rapid review of the Managed Isolation and Quarantine system released today, Housing Minister Megan Woods said. The review was commissioned just over a week ago to identify ... More>>

ALSO:

Election 2020: Parties Get Into Gear

ACT has today announced its list for the 2020 General Election. “The calibre and experience of our candidates will impress voters of every persuasion. We have candidates from all walks of life. People who have built their homes, families and businesses ... More>>

ALSO:


Int'l Trade: New Zealand To Host Virtual APEC In 2021

Foreign Affairs Minister Winston Peters and Trade and Export Growth Minister David Parker announced today that New Zealand’s hosting of APEC in 2021 will go ahead using virtual digital platforms. Mr Peters said the global disruption caused by COVID-19, ... More>>

ALSO:

 
 
 
 
 

LATEST HEADLINES

  • PARLIAMENT
  • POLITICS
  • REGIONAL
 


 

InfoPages News Channels