Scoop has an Ethical Paywall
License needed for work use Register

Video | Business Headlines | Internet | Science | Scientific Ethics | Technology | Search

 

Patient Advocacy Group Welcomes Recommendation

Patient Advocacy Group Welcomes Royal Commission's Recommendations

The New Zealand Organisation for Rare Disorders is delighted with the health and research recommendations in the report of the Royal Commission on Genetic Modification.

NZORD Executive Director, John Forman, said there is great relief among patients and their families that the Commission has rejected any restriction on access to vital medicines obtained from genetic modification technology.

"The Commission's report acknowledges the benefits to be gained from further development of such medicines, and the great potential for gene therapy and other novel therapies to treat disease.

"We are very pleased they have supported these objectives by recommending a streamlining and simplification of new research approval processes, and for the approval of new medicines produced", said Mr Forman. "That will help speed the research efforts and produce more treatments sooner.

"NZORD also welcomes the Commission's endorsement of the safety regimes governing such research, and the recommendations for reinforcement of the ethical oversight of the application of this new technology.

"Safety and ethics are of vital interest to families affected by rare and complex disorders, and the recommendations will help to ensure our and the public's confidence in the safety and beneficial application of genetic modification.

"NZORD looks forward to speedy implementation of the report by Government", Mr Forman concluded.

Ends

Advertisement - scroll to continue reading

Are you getting our free newsletter?

Subscribe to Scoop’s 'The Catch Up' our free weekly newsletter sent to your inbox every Monday with stories from across our network.

© Scoop Media

Advertisement - scroll to continue reading
 
 
 
Business Headlines | Sci-Tech Headlines

 
FMA: MAS To Pay $2.1M Penalty For Making False Representations

Following proceedings brought by the FMA, MAS has been ordered to pay a $2.1M penalty for making false and/or misleading representations to some customers. MAS admitted failing to correctly apply multi-policy discounts and no claims bonus discounts to some customers, failing to correctly apply inflation adjustments on some customer policies, and miscalculating benefit payments.More

IAG: Call On New Government To Prioritise Flood Resilience

The economic toll of our summer of storms continues to mount, with insurance payouts now topping $1B, second only to the Christchurch earthquakes. AMI, State, & NZI have released the latest Wild Weather Tracker, which reveals 51,000 claims for the North Island floods & Cyclone Gabrielle, of which 99% (motor), 97% (contents), and 93% (home) of claims have now been settled. More

 
 
 
 
 
 
 
 
 
 
 
 

Join Our Free Newsletter

Subscribe to Scoop’s 'The Catch Up' our free weekly newsletter sent to your inbox every Monday with stories from across our network.