https://www.scoop.co.nz/stories/GE2111/S00215/cystic-fibrosis-wont-take-a-break-this-christmas.htm
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Cystic Fibrosis Won’t Take A Break This Christmas |
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Help make a difference by visiting the Cystic Fibrosis Christmas Tree Festival at Wellington Airport, 24 November – 9 January
The harsh
realities of life with cystic fibrosis (CF) can be
especially tough on a child at Christmas.
People with CF endure a life-long, demanding and time-consuming daily regime of lung clearance and medication, together with regular medical check-ups, increasingly frequent hospitalisations, and in some cases lung transplantation.
The fact is that CF won’t take a break this Christmas.
That’s why nearly 50 businesses, community groups, and organisations have joined together in the CF Christmas Tree Festival at Wellington Airport to raise funds for vital, practical support for CF families throughout the Christmas period.
CF is a serious and ultimately terminal genetic condition which affects more than 540 people in New Zealand. Only half of those with CF reach 31 years of age.
Lisa Burns, Chief Executive at Cystic Fibrosis NZ said: “The support of businesses and organisations is really crucial, because CF affects families in so many ways – often causing severe financial stress. I’m so thankful for the compassion of everyone participating in the festival, and in supporting people affected by this devastating condition. All money raised will help make a huge difference.”
Money raised through the festival helps provide:
The annual Christmas Tree Festival – a joint event between Wellington Airport and Cystic Fibrosis NZ offers businesses and organisations the opportunity to showcase their brand in a creative way, whilst raising funds to improve the lives of New Zealanders with cystic fibrosis (CF).
Jo Maxwell, Manager Brand and Sponsorship at Wellington Airport said: “The arrival of the CF Christmas trees is the first sign that Christmas is coming and always creates lots of buzz and excitement in the terminal. After 7 years of hosting the festival, this year we have the most trees ever, which is amazing when you consider what a tough time it’s been for many businesses. We’re so proud to support Cystic Fibrosis NZ and hope next year is another record breaker!”
Some of the businesses and groups involved this year include Wellington Phoenix, Rydges, Whittakers, Subway, Ben & Jerry’s, Fontera and Naylor Love.
Wellington Airport will provide prizes for the best Christmas Trees which, in 2020, saw the 1st place winner receiving a $10,000 advertising package at Wellington Airport. There will also be a fun treasure hunt for kids and a People’s Choice vote, with the chance to win $500 to spend in the terminal.
This years’ Christmas tree decorated by Cystic Fibrosis NZ features poignant photos and stories of some of the Kiwis with CF who would benefit from the breakthrough treatment Trikafta. This medication is currently not funded by Pharmac, and visitors are asked to scan a QR code to sign the petition and help change this.
For more information on the festival visit www.wellingtonairport.co.nz/community/sponsorships/cystic-fibrosis-wellington-christmas-tree-festival
Photos of some of the trees in the terminal: https://www.dropbox.com/sh/g9l8p93l4k52668/AADRIG3hjjzhQikG43rnZnyYa?dl=0
People’s Choice Page: https://www.wellingtonairport.co.nz/news/competitions/vote-for-your-favourite-christmas-tree-and-be-in-to-win/
About
Cystic Fibrosis NZ
Cystic Fibrosis NZ is the
only charity dedicated to supporting and improving quality
of life for people with CF and their families. Established
in 1968 as a volunteer support group for parents with a
newly diagnosed child, we dedicate ourselves to shaping a
brighter future for everyone with CF.
About
cystic fibrosis
Cystic fibrosis (CF) is a
serious illness that affects lungs and digestion. It is the
most common life-threatening genetic disorder affecting
Kiwis. It is caused by a faulty gene that has been passed
down from a baby's mum and dad and is usually diagnosed soon
after birth. One in 25 people carry the faulty gene that
causes it, often without even knowing.
There are over 540 Kiwis with CF, and it’s usually diagnosed through the heel prick test as part of new-born screening. CF affects everyone differently, but for many it involves a rigorous daily treatment regime including chest physiotherapy, oral, nebulised and occasionally intravenous antibiotics, and taking enzyme tablets with food. CF can cause diabetes, asthma, liver disease, and permanently reduced lung function which, in many cases, requires a transplant
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