Art & Entertainment | Book Reviews | Education | Entertainment Video | Health | Lifestyle | Sport | Sport Video | Search

 

A new picture book to inspire sick children

A new picture book has been written to inspire sick children

A picture book telling the story of a Christchurch boy’s fight for life has been written to inspire other sick children.

In 2006 Jaxon Skews’ parents Aaron and Michelle found him grey and struggling for breath. He was flown to Starship Hospital where a specialist diagnosed him with a rare condition called Chronic Granulomatous Disorder. The disease targets the immune system and leaves the body vulnerable to infections.
At the time Jaxon was only the sixth child in New Zealand to suffer from the condition. Jaxon also had a rare blood condition called McLeod Phenotype, which only affects a handful of people worldwide.

Jaxon underwent two years of operations, which meant both parents had to stop work to stay with him in Auckland. This caused huge financial stress .
Joy Butel, a family friend, was so upset by this she headed a fundraising campaign to help.

Fundraising for Jaxon changed his life and was also a life changing experience for Ms Butel who has now made it a life mission to encourage other people to give.

The experience inspired her to create a picture book depicting the journey to Jaxon’s recovery called Jaxon is the Star. Five dollars from every book sold will be donated to Ronald McDonald House where Jaxon’s parents spent so much time when he was sick.

Ronald McDonald House also has a special significance for Ms Butel because her own daughter spent time there when a family member was sick.
“I wanted to give something back to acknowledge all the people that gave so much to Jaxon,” she said.

Books will be available for families to read at Ronald McDonald House.
“ If this book inspires a sick child to have hope or encourages someone to help a friend in need then it has done its job,” Ms Butel said.
The book tells the story of Jaxon’s recovery, how Ms Butel raised the money, and how he became well again.

The first books will go on sale at Ballantynes on September 23 at a fundraising fashion parade for Ronald McDonald House. Books will also be available from selected Christchurch book shops and sold online at www. pay-it-forward.co.nz; or www.jaxon.co.nz

ENDS

© Scoop Media

 
 
 
Culture Headlines | Health Headlines | Education Headlines

 


Howard Davis: Emerald Fennell's Promising Young Woman'


The Guardian needed not one, but three reviews to do justice to Fennell's unsettling approach, which indicates exactly how ambiguous and controversial its message really is. More>>


Howard Davis: Jill Trevelyan's Rita Angus

Although Angus has become one of Aotearoa’s best-loved painters, the story of her life remained little known and poorly understood before Jill Trevelyan's acclaimed and revelatory biography, which won the Non Fiction Award at the Montana New Zealand Book Awards in 2009, and has now been republished by Te Papa press. More>>

Howard Davis: The Back of the Painting

Painting conservators are the forensic pathologists of the art world. While they cannot bring their subjects back to life, they do provide fascinating insights into the precise circumstances of a painting's creation, its material authenticity, and constructive methodology. More>>


Howard Davis: Black Panthers on the Prowl

A passionate and gripping political drama from Shaka King, this is an informative and instructive tale of human frailty that centers around the charismatic Chicago Black Panther leader Fred Hampton, who was murdered at the age of twenty-one during a police raid. More>>

Howard Davis: Controlling the High Ground

Stephen Johnson's raw and angry film not only poses important questions with scrupulous authenticity, but also provides a timely reminder of the genocidal consequences of casual bigotry and xenophobia. More>>

Howard Davis: Dryzabone - Robert Conolly's The Dry

After the terrible devastation caused by last year’s bushfires, which prompted hundreds of Australians to shelter in the ocean to escape incineration and destroyed uncountable amounts of wildlife, The Dry has been released during a totally different kind of dry spell. More>>


Howard Davis: Hit the Road, Jack - Chloé Zhao's Nomadland

Nomadland is perhaps the ultimately 'road' movie as it follows a group of dispossessed and disenfranchised vagabonds who find a form of communal refuge in camp sites and trailer parks after the economic contraction of 2008. More>>

 
 
 
 
 
 

LATEST HEADLINES

  • CULTURE
  • HEALTH
  • EDUCATION
 
 
  • Wellington
  • Christchurch
  • Auckland