Media Release from the NZ LAM Trust

FOR IMMEDIATE RELEASE 15 October 2014

RARE LUNG DISEASE HIGHLIGHTED IN WEB VIDEO SERIES

Look around you. If you can see a dozen people, then one of them may have something you don’t ... a rare disease.

There are more than seven thousand rare disorders and while doctors can’t be expected to know about all of them, a video series launched today highlights a rare lung disease that affects almost exclusively women of child-bearing age, in an effort to increase the likelihood of crucial early treatment.

The New Zealand LAM Charitable Trust has produced the LAM for GPs videos, introduced and narrated by Carol Hirschfeld, to help doctors become more aware of the lung condition Lymphangioleiomyomatosis, known as LAM for short

“It’s essential for doctors to be aware of this rare disease. There is no cure, but there is an effective treatment, especially if diagnosed early,” says Bronwyn Gray, Director of the NZ LAM Trust.

The web series of short videos offers advice from people who really know about LAM: the patient, the family doctor, the respiratory specialist, the lung transplant respiratory physician as well as the transplant co-ordinator.

It’s an opportunity to gain more knowledge about a rare disease that a woman you know may have.

For more information about LAM, go to www.lam.org.nz

ENDS

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