News Video | Policy | GPs | Hospitals | Medical | Mental Health | Welfare | Search


Health law expert to discuss patients’ rights at GBS group


Health law expert to discuss patients’ rights at Guillain-Barré Syndrome conference

Former New Zealand Health and Disability Commissioner Ron Paterson will deliver a keynote address on patients’ rights at a conference in Wellington later this month focused on the rare disorder Guillain-Barré Syndrome.

"Understanding Guillain-Barré Syndrome and CIDP" is the fifth national conference organised by the Guillain-Barré Syndrome Support Group of New Zealand. It will be held from 29 April to 1 May 2011 at the Brentwood Hotel in Kilbirnie, Wellington.

The biennial conference is for people with Guillain-Barré Syndrome (GBS) and its variants such as Miller-Fisher Syndrome, acute motor axonal neuropathy (AMAN) and others as well as patients with chronic disorders such as Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) and related disorders. One of the main aims of the conference is to provide a forum where people with GBS and their carers can share experiences and benefit from the experience of others in situations similar to their own.

GBS is a rare autoimmune disorder, where the body's own immune system turns on itself and attacks the peripheral nervous system causing temporary muscle weakness, sometimes to the point of severe paralysis, sensory loss and pain. Often triggered by a preceding illness, GBS has an incidence of 1-2 people per 100,000 or about 40-80 New Zealanders a year. CIDP is a chronic or ongoing neuropathy that closely resembles GBS.

Professor Paterson, who was New Zealand Health and Disability Commissioner from 2000 to 2010, is currently Professor of Health Law and Policy at the University of Auckland and is writing a book on medical regulation as New Zealand Law Foundation International Research Fellow.

Professor Paterson’s presentation will explain the background to New Zealand’s Code of Health and Disability Services Consumers’ Rights, and the system for promoting and protecting patients’ rights in New Zealand. He will discuss the general hopes and fears of patients with serious acute and chronic health conditions, and what they expect from the health professionals caring for them and the health system, before looking at the specific needs of patients with GBS and CIDP, their families and support people, and areas of the Code with particular relevance to this group.

“Key issues I will cover will be the right to information and effective communication, the concept of duty of care, the question of competence and the importance of compassion,” said Professor Paterson.

“I will draw on cases from my time as Health and Disability Commissioner to illustrate the lessons to be learned in situations where the needs and legal rights of patients are not met.”

Professor Paterson, who holds law degrees from Auckland and Oxford universities, is recognised internationally for his expertise in regulation of patients’ rights and healthcare quality improvement. He is co-editor of the textbook Medical Law in New Zealand (2006).

The 2011 GBS/CIDP conference is open to current and former GBS/CIDP patients, and their families and caregivers. It will also appeal to neurologists, physiotherapists, occupational therapists, nurses and general practitioners. The conference, which will be officially opened by Labour MP Steve Chadwick, Patron of GBS New Zealand, includes two keynote presentations by Professor Gareth Parry, Medical Director of the Clinical Neuroscience Research Unit at the University of Minnesota who has studied GBS and its variants for the best part of four decades. There will also be presentations by former patients, an experts' forum with Q & A time and group discussion sessions.
For more information visit the GBS NZ Support Group’s website at


© Scoop Media

Culture Headlines | Health Headlines | Education Headlines


NZ Festival : The NZSO Goes To The Disco and more...

In the endless, anguished debates about how to make classical music more relevant to new audiences, proposals are often put forward to strip away certain elements – reduce the formality ... More>>


Howard Davis: Charlotte Yates' Mansfield Project

Katherine Mansfield's vapid verses are of even less interest than her over-rated short stories, but Yates has risen to the challenge of producing a fascinating compilation album by a variety of musicians to accompany her poetry. More>>

Howard Davis: Dazed & Confused by Beats

Beats is both a coming-of-age tale and a romantic movie about endings, set to a nostalgic backdrop of the disappearing tail of the UK's illegal rave scene. More>>

Howard Davis: And The Oscar Goes To … Parasite
For its deliciously dark wit and genre-bending ingenuity, Bong Joon-ho's latest movie has just won four out of a potential six Academy Awards, including Best Screenplay and Director. Only ten foreign-language films have previously been nominated for Best Picture and none have won before. More>>

Howard Davis: 1917's 1,000 Yard Stare

Sam Mendes has created a terrible and barbarous trek, one that we appreciate all the more for being catapulted right into the midst of this ear-splitting melee from the film's opening sequence. More>>

Howard Davis: 1917's 1,000 Yard Stare

Sam Mendes has created a terrible and barbarous trek, one that we appreciate all the more for being catapulted right into the midst of this ear-splitting melee from the film's opening sequence. More>>

Over 150 Productions: NZ Fringe 2020 Has Launched

The upcoming festival will be held at 40 venues all over Wellington Region from 28 February to 21 March, and includes every genre possible—theatre, comedy, dance, music, clowning, cabaret, visual art, children’s shows and more! More>>





  • Wellington
  • Christchurch
  • Auckland