New Kaupapa Places Whānau Māori Voice At The Centre Of Stroke And Gout Research

New kaupapa places whānau Māori voice at the centre of Stroke and Gout research

The Āti Awa Toa Hauora Partnership Board has today launched a new research kaupapa focused on the experiences of whānau Māori affected by stroke and gout across the Wellington rohe.

Developed in partnership with Stroke Aotearoa and Arthritis New Zealand (Mateponapona Aotearoa), the research seeks to better understand how these long-term conditions impact whānau Māori - whether through personal experience or within the wider whānau.

A QR-code survey launched today invites whānau Māori to share lived experiences, challenges, and ideas for the kinds of services and supports that would make a real difference for them. The kaupapa has been developed collaboratively by researchers from all three organisations, with oversight from clinical experts.

Stroke and Gout disproportionately affect whānau Māori in the Wellington rohe, yet services are often fragmented and condition specific. This research aims to elevate whānau voice to inform more joined-up, community-based models of support that reflect the realities of whānau lives.

“Across all three organisations, a clear message has emerged - whānau voice must be heard, seen, and centred if we are to achieve better health outcomes,” says Hikitia Ropata, Āti Awa Toa Hauora Partnership Board’s Manahautū.

The launch aligns with Maurea in the Maramataka, a time associated with physical wellbeing and strengthening the body, reinforcing the kaupapa’s focus on long-term hauora.

Health providers, community organisations, and partners across the rohe are encouraged to share the survey with whānau Māori who may wish to participate, including through staff networks, clinical teams, and waiting areas.

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