Gordon Campbell | Parliament TV | Parliament Today | Video | Questions Of the Day | Search


Great news for New Zealanders with cystic fibrosis

Health Minister Dr David Clark says he is delighted that PHARMAC has struck a provisional deal to fund Kalydeco – a medicine which is set to improve the quality of life for about 30 New Zealand children and adults with cystic fibrosis.

“While rare, cystic fibrosis is an awful inherited life-threatening disease which affects people’s ability to breathe and to digest food. I know PHARMAC still has more work to do before New Zealanders can be prescribed this medicine but I’m encouraged PHARMAC believes this can happen quickly, potentially by March 1 this year.

“I’m particularly happy that PHARMAC is taking steps to ensure this medicine is available to children under six.

“PHARMAC’s funding decision on this medicine was based on strong new evidence of its effectiveness. I also understand the Government’s $60m boost to PHARMAC’s funding last year on top of the $40m increase in Budget 2019 was also a significant factor in securing this deal with Kalydeco’s supplier.

“Once again, this demonstrates the strength of the PHARMAC model in delivering effective new medicines for New Zealanders. I thank them and Kalydeco’s supplier Vertex for their positive work to make this medicine available here,” said David Clark.

© Scoop Media

Parliament Headlines | Politics Headlines | Regional Headlines

Land, Air & Sea: Regions To Benefit From NZ Upgrade

Regional New Zealand will be a hive of activity in the coming months as the New Zealand Upgrade Programme delivers on its promise to modernise our infrastructure, prepare for climate change and help grow our economy. As part of the $12 billion NZ Upgrade Programme announced by the Government last month, $300 million was allocated for capital projects in regional New Zealand.
The first package of regional projects – worth about $190 million – has been announced by Regional Economic Development Minister Shane Jones at an infrastructure seminar today... More>>


Gordon Campbell: On The Donations Scandals

By now, it seems crystal clear that something is deeply amiss with the way that New Zealand political parties solicit, receive and report their funding. Evidently, the nominal threshold of $15,000 that requires public disclosure of the donation ... More>>


New Zealand Government: Action On Fuel Market Competition

The Government has released a comprehensive response to ensuring New Zealanders get a fairer deal at the petrol pump. This follows the Commerce Commission fuel market ... More>>


Child Poverty: 18,400 Children Lifted Out Of Poverty

Prime Minister Jacinda Ardern has welcomed new reporting showing the Coalition Government is on track to meet its child poverty targets, with 18,400 children lifted out of poverty as a result of the Families Package... More>>


Gordon Campbell: On Our Unreal Optimism About Coronavirus

At this week’s Chinese New Year celebrations, PM Jacinda Ardern was resolutely upbeat that business with China would soon bounce back to normal – better than ever, even - once the coronavirus epidemic has been brought under control. To Ardern, ... More>>






InfoPages News Channels