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Documentary Helps NZers With Rare Skin Disorder

29 April 2005

Documentary Helps New Zealanders With Rare Skin Disorder

Prime Television’s screening of Emmy award-winning documentary, “The Boy Whose Skin Fell Off” will benefit New Zealanders with a rare genetic disorder, known as EB or Epidermolysis Bullosa, in which skin breaks down and blisters at the slightest touch.

Prime Documentary, “The Boy Whose Skin Fell Off” screens this coming Tuesday 3 May at 8.30pm, following a special edition of “Paul Holmes” focusing on young New Zealanders who have the painful and debilitating skin disorder.

‘The Boy Whose Skin Fell Off’ traces the last six months in the life of Jonny Kennedy, a young Englishman with considerable courage and a zest for life. Knowing he is dying, Jonny sets out to raise awareness of EB, while experiencing life to the full; he gains his independence and goes flatting, he parties and enjoys the company of his family and friends and he plans his funeral – his way.

The ground-breaking documentary screened twice in the UK last year due to public demand, helping raise more than 500,000 pounds for EB research.

Prime Television is giving New Zealanders the opportunity to support EB. During ‘Paul Holmes’ viewers will be invited to make donations to EB support group and registered charity, DEBRA (Dystrophic Epidermolysis Bullosa Research Association).


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