News Video | Policy | GPs | Hospitals | Medical | Mental Health | Welfare | Search

 

Let your voice count to make a difference

Let your voice count to make a difference: NZ Voice of Rare Disorders survey

Would you like to play a part in highlighting the barriers within the current health system for people living with rare disorders? Complete this survey and share your experiences.

Let the collective voice be heard in this survey so we can show the Ministry of Health and the Government where the barriers are within the current health services, and advocate for changes to make a real difference.

This survey is open to anyone who is living with a rare disorder in NZ, as well as their family members and carers. Your responses will help to provide insight into the unmet treatment needs of people who are living with a rare disorder in this country. Please forward this link to as many of your contacts in the rare disorder community as possible.

The survey will close on Monday 2nd December 2019.

Thanks in advance for your support and participation – the more people who respond and share their experiences, the more powerful our voice will be!

NZ Voice of Rare Disorders Survey link


ends

© Scoop Media

 
 
 
Culture Headlines | Health Headlines | Education Headlines

 


Howard Davis: Three Stocking Stuffers from Te Papa Press

Te Papa has published three wonderfully informative and beautifully produced volumes that describe the people and cultures encountered during Cook's voyages and the Māori cultural treasures he discovered there. More>>


40 Years On: Prime Minister Delivers Erebus Apology

"That loss, in and of itself, was huge. It sent ripples across the country, and trauma that those who weren’t directly affected would probably struggle to fathom. But that loss and grief was compounded. It was undeniably worsened by the events that followed." More>>

ALSO:

The Testaments: Margaret Atwood Announces Three NZ Events

The evening will also feature Atwood’s remarkable career, her diverse range of works and why she has returned to the fictional world of Gilead 34 years later. More>>

Transit Of Mercury: Historic Viewing Recreated

Keen stargazers gathered at Te Whanganui o Hei on the Coromandel Peninsula to watch a rare astronomic event this morning. More>>

Forest And Bird: Hoiho Crowned Bird Of The Year For 2019

Widely considered an underdog, the valiant hoiho (yellow-eyed penguin) has won Bird of the Year, a first for seabirds in the competition's 14-year history. More>>

ALSO:

 
 
 
 
 

LATEST HEADLINES

  • CULTURE
  • HEALTH
  • EDUCATION
 


 
  • Wellington
  • Christchurch
  • Auckland