News Video | Policy | GPs | Hospitals | Medical | Mental Health | Welfare | Search


Protecting the right to grow up

Protecting the right to grow up

28 October 2015

Media release

IHC supports Disability Rights Commissioner, Paul Gibson's, call for law change.

IHC has serious concerns about growth attenuation – the process of stunting the growth of children with disabilities.

Charley’s story has been in the media again today. She has completed a treatment that means she will now not go through puberty and will reportedly remain at a little over a metre tall, weighing in at 23 kg.

It has also been reported that her parents appealed for her to be given the treatment in New Zealand, but that was declined by the ethics committee. They subsequently went overseas to begin the treatment – once it was begun medical professionals had little option but to complete it here in New Zealand.

“This is an incredibly complicated case,” says IHC Director of Advocacy Trish Grant. “There is huge public sympathy for this family’s situation which we understand, however, we must pause to think about what this means for disabled children’s human rights.”

“This shows that as a society we are failing to provide people with disabilities and their families the support they need on a day to day basis.”

“We have to protect the rights of our most vulnerable – and we have to support families properly so that they aren’t pushed to take such drastic decisions that can never be undone.”


© Scoop Media

Culture Headlines | Health Headlines | Education Headlines


Howard Davis: Emerald Fennell's Promising Young Woman'

The Guardian needed not one, but three reviews to do justice to Fennell's unsettling approach, which indicates exactly how ambiguous and controversial its message really is. More>>

Howard Davis: Jill Trevelyan's Rita Angus

Although Angus has become one of Aotearoa’s best-loved painters, the story of her life remained little known and poorly understood before Jill Trevelyan's acclaimed and revelatory biography, which won the Non Fiction Award at the Montana New Zealand Book Awards in 2009, and has now been republished by Te Papa press. More>>

Howard Davis: The Back of the Painting

Painting conservators are the forensic pathologists of the art world. While they cannot bring their subjects back to life, they do provide fascinating insights into the precise circumstances of a painting's creation, its material authenticity, and constructive methodology. More>>

Howard Davis: Black Panthers on the Prowl

A passionate and gripping political drama from Shaka King, this is an informative and instructive tale of human frailty that centers around the charismatic Chicago Black Panther leader Fred Hampton, who was murdered at the age of twenty-one during a police raid. More>>

Howard Davis: Controlling the High Ground

Stephen Johnson's raw and angry film not only poses important questions with scrupulous authenticity, but also provides a timely reminder of the genocidal consequences of casual bigotry and xenophobia. More>>

Howard Davis: Dryzabone - Robert Conolly's The Dry

After the terrible devastation caused by last year’s bushfires, which prompted hundreds of Australians to shelter in the ocean to escape incineration and destroyed uncountable amounts of wildlife, The Dry has been released during a totally different kind of dry spell. More>>

Howard Davis: Hit the Road, Jack - Chloé Zhao's Nomadland

Nomadland is perhaps the ultimately 'road' movie as it follows a group of dispossessed and disenfranchised vagabonds who find a form of communal refuge in camp sites and trailer parks after the economic contraction of 2008. More>>



  • Wellington
  • Christchurch
  • Auckland